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I’m 60 now. I had a complete sudden dissection at 50. I understand how worried you...
https://connect.mayoclinic.org/comment/1222113/
Communities like Aortic Hope or Marfan ... Foundation (even if you don’t have Marfan ... syndrome, they deal with connective
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Thank you for sharing your post. I survived a complete Type A-1 ascending aortic dissection at...
genetic testing for conditions like Marfan ... syndrome, Loeys-Dietz syndrome, or
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@sammymatt Welcome to Connect. It sounds like you are in the midst of diagnostic testing. When...
www.mayoclinic.org/diseases-conditions/gilberts-syndrome ... Certainly, Marfans Disease is also a ... www.mayoclinic.org/diseases-conditions/marfan-syndrome
Comment
Hi Colleen, Thanks for asking... I worked hard last night to get some of the symptoms...
connective tissue disorders (Ehlers-Danlos Syndrome ... , Marfan Syndrome, Chiari Malformation ... (head pounds to beat of heart)
Marfan ... Abnormal thumb joints
Reynauds Syndrome
Comment
I just want to add this: Knowing that you have an enlarged aorta means you can...
RISK FACTOR: Certain genetic syndromes ... potentially fatal aortic dissection: Marfan ... syndrome, Loeys-Dietz syndrome, Turner ... syndrome and Vascular Ehlers-Danlos ... syndrome.
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