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Jul 8, 2016 · Pulmonary Fibrosis* in Lung Health

My husband tolerated Esbriet very well, minimal side effects. Continued progression of IPF but it may have gone much quicker without Esbriet?

Jul 8, 2016 · Pulmonary Fibrosis* in Lung Health

Oh my gosh, somehow I thought it was today! He just got kicked out of the ICU, bed needed for a sicker patient :-). Life is good indeed!

Jul 8, 2016 · Pulmonary Fibrosis* in Lung Health

Colleen, I had registered for the chat but then missed it due to being with my husband as he took his first walk – he lapped the ICU :-). Will this be archived?

Jul 6, 2016 · Pulmonary Fibrosis* in Lung Health

Yes, just yesterday – the greatest gift of all, a second chance. Overwhelmed today with thoughts of his donor/family and so deeply grateful. Hubby is doing well.

Jul 6, 2016 · Pulmonary Fibrosis* in Lung Health

Thanks Colleen! We’re striving for 15 years too … my husband recieved a bilateral lung transplant yesterday, July 5. So thankful for the medical teams at Mayo and our hero, his donor.

Jun 8, 2016 · Pulmonary Fibrosis* in Lung Health

Yes, I’ve viewed the webinar, love Dr. Kennedy – she’s on service this week. My husband is doing very well, stable and comfortable on opti-flow oxygen. Great staff on Mary Brigh 6F! I’m doing well also, we’re patiently waiting for a donor gifting his miracle of more life.

Jun 7, 2016 · Pulmonary Fibrosis* in Lung Health

My husband was diagnosed with IPF about four years ago. Was listed for a lung transplant in December 2014 and is currently inpatient at Mayo Rochester.