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Posts (53)

Sep 2, 2016 · Myotonic Dystrophy type 2 in Bones, Joints & Muscles

No I haven’t asked nor has it ever been mentioned to me , but very interesting . I wonder if they even test for that in the lab here
Are you saying that fluoride can/may cause renal/kidney dysfunction ? How would the fluoride get into my body as there is no fluoride in our water, no fluoride treatments from dentist, nor in my toothpaste
Yes I do drink lots of filtered, fresh lemon water in order to prevent kidney stones as I have Hyperparathyroidism

Thank You

Sep 2, 2016 · Myotonic Dystrophy type 2 in Bones, Joints & Muscles

Hi Gail , thank you for your reply .Happy to hear you had a wonderful experience
I will keep note of your surgeon for certain altho I do know that I am one with a more complicated case, would take more than 15 min pt surgery. Not sure if you told me before , but what were your labs – cal & pth . In my case I would have to pay for the entire sum
How many pt adenoma’s did you have removed Gail
Did you/do you have relief of any symptoms yet ?

Sep 1, 2016 · Myotonic Dystrophy type 2 in Bones, Joints & Muscles

Yes I know, but I have no way of ever finding out if I had chicken pox or not. The shingles vaccine has shown to help only about 50% of those who get the vaccine but it is still fairly new .
I live in very Northern Manitoba Canada Gail an my kidney’s have shown signs for some time which has been neglected to be noted by any GP’s here, so not sure what stag I am in .
Yes, same thing I get here from the endo + surgeon. Too risky for me to have pt surgery , I am going on to 66. They say this due to the fact that they do not have enough pt surgical experience, not confident in their own skills – altho I have been also told that I am a more complicated case.
What means anything is what your pt hormone level was at same blood draw with ca of 10.0 etc. The values by themselves don’t mean much . Are these you serum calcium labs after pt surgery Gail ?

I am so happy to hear you have this surgery behind you Gail, so glad to hear it was successful. How do u feel . Any symptoms gone away yet > You are so very fortunate to live where u do and have access to great surgeons etc

Sep 1, 2016 · Treating Osteoporosis in Bones, Joints & Muscles

I agree Kara , Calcium supplements should only be taken if ones serum calcium is low. Long term research shows /We know for a fact that Vitamin D replacement helps slow down or at times prevent progression of osteoporosis

Sep 1, 2016 · Treating Osteoporosis in Bones, Joints & Muscles

Hi Mary
Have they checked your blood calcium again , was it still high ? If so , did they test your parathyroid hormone level ?

Jan

Sep 1, 2016 · Myotonic Dystrophy type 2 in Bones, Joints & Muscles

Hi Colleen

I now have been informed that my renal/kidney function is declining. Apparently have been for some time now that I have copies of test back a few yrs. 10 month waiting list to see a kidney specialist.
Not related to the normal causes such as high bl press nor diabetes, so I highly suspect do to long term hyperparathyroidism.
My bio Mom passed from renal cell cancer , so of course this is also in the back of my mind

Sep 1, 2016 · Myotonic Dystrophy type 2 in Bones, Joints & Muscles

Hi Gail – Jan here . Did you find out more or have parathyroid surgery yet ? So sorry to hear that you got shingles . I was under the impression that if one seeks medical attention within ( I believe ) 4 hrs , there is something they can give a person so the shingles are not so bad ?
Have always wondered if the vaccine is worth getting as I have no way of finding out if I ever had shingles

Jun 17, 2016 · Endocrine surgeons with expertise in parathyroid disease? in Diabetes/Endocrine System

Hi Gail

Glad to hear you have the option of pt surgery. The Dr could do a Skype interview with you to save you one trip ? I imagine you have to pay for this surgery out of pocket
I am in Northern Manitoba