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Posts (5)

Sep 30, 2015 · Webinar: Interstitial Lung Disease and Lung Transplant: What Patients Need to Know in Transplants

Thanks, my diagnosis was made by open lung biopsy sent to the mayo clinic in Arizona. I am also on 2000mg of cellcept for the NSIP with 30% fibrosis.

Sep 30, 2015 · Webinar: Interstitial Lung Disease and Lung Transplant: What Patients Need to Know in Transplants

I posted earlier of the severe joint pain. I failed to mention that I have been to a rheumatologist and all came back neg.

Sep 30, 2015 · Webinar: Interstitial Lung Disease and Lung Transplant: What Patients Need to Know in Transplants

I have NSIP and have severe joint pain. I am also weaning from prednisone. Could the joint pain be from the withdrawals are some type of auto immune disease that has not surfaced yet?

Sep 30, 2015 · Webinar: Interstitial Lung Disease and Lung Transplant: What Patients Need to Know in Transplants

I have NSIP and was diagnosed 3 yrs ago. What should i be looking for as for as progression?