I have been using mycophenolate 500 tabs for about 6 months for a combination of dermatomyositis (dms) and interstitial lung disease (ILD). My rheumatologist prescribed it, and when I tried to have the rx filled, I found that my insurance (Medicare and Blue Shield PPO) would not cover it, thereby making the brand name cost me $1400 per month for 60 tabs. Well, no. My darling pharmacist sent me to Costco, where I now pay $47 for 90 tabs per month. Medicare, Blue Shield and the FDA flatly said NO to covering any or all of it.
I have found absolutely no difficulties with it other than occasional constipation. I can deal with that. It does take at least 6 months for the effectiveness to show up, according to all I have read. I am dealing with a short life span at this stage, and if this medication slows down the progression of the illnesses and gives me a bit more time to do the things I want to do, I’m on board.
I send my best wishes…