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Posts (4)

Apr 14, 2016 · Is anyone here on, or been on, mycophenolate for PN? in Neuropathy

Hello John,
I have been using mycophenolate 500 tabs for about 6 months for a combination of dermatomyositis (dms) and interstitial lung disease (ILD). My rheumatologist prescribed it, and when I tried to have the rx filled, I found that my insurance (Medicare and Blue Shield PPO) would not cover it, thereby making the brand name cost me $1400 per month for 60 tabs. Well, no. My darling pharmacist sent me to Costco, where I now pay $47 for 90 tabs per month. Medicare, Blue Shield and the FDA flatly said NO to covering any or all of it.
I have found absolutely no difficulties with it other than occasional constipation.  I can deal with that. It does take at least 6 months for the effectiveness to show up, according to all I have read. I am dealing with a short life span at this stage, and if this medication slows down the progression of the illnesses and gives me a bit more time to do the things I want to do, I’m on board.
I send my best wishes… 
Debi   

May 18, 2015 · Dermatomyositis in Lung Health

Hi,I live in Northern California. My next step is to document those folks who have been taking cellcept for DMS/ILD and having it paid by insurance.  I can then have something in my hot little hand to show the insurance folks.  Thank you for the info.Peace, 
Db

May 18, 2015 · Dermatomyositis in Lung Health

Thank you, Buttons, for both the info and the prayers. My doc has spent at least 1 hour on the phone with Blue Shield, and the answer each time has been a resounding no. What state are you in and what is your supplemental insurance? If it’s Blue Shield, I’m gonna have a hissy fit!!!    Hope to hear from you soon.  Blessings, 
Db 

May 18, 2015 · Dermatomyositis in Lung Health

Dx DMS IN 1998. Re prednisone 2 years, then methotrexate for 4 years. Have been in remission, sort of, since 2004. Just diagnosed with interstitial lung disease and doc wants to put me on cellcept, but no go per Blue Shield. How do others get this okayed by insurance? Or is it because I’m on Medicare and “FDA has not approved its use for this disease”? Praying for miracles to happen here!