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Posts (2)

Oct 7, 2012 · Livedoid vasculopathy in Blood Cancers & Disorders

Hi angelasmom,thanks for sharing with me what you’ve gone through I know it’s not easy to live with LV. I’ve had LV about 6 years but was just diagnosed a year ago. Back in December 2011 I was hospitalized because I had a mega flare up! It was so bad that I got gangrene I had 3 really big ulcers the size of baseballs and I could not walk because of the pain and swelling.Thank God for a Dr. Named Dr. Marc Hare, he works at the center for wound healing and hyperbaric medicine,he went to see me at the hospital. I go to see him once a week for the ulcers and he diagnosed the LV, I also see a hematologist every 2 weeks to check my inr as I am on caumadin. In the beginning I was seeing a vein doctor and had some surgery done but as you said this disease has no cute yet, only the symptoms are delt with not the problem.i pray one day we may be cured of this disease, at the moment I am also in remission, oh and I also had skin grafts put on my ankles.

Oct 5, 2012 · Livedoid vasculopathy in Blood Cancers & Disorders

My name is Alejandro, im 35 years old and was diagnosed 1 year ago with livedoid vasculopathy. I have atrophie blanche and livedo reticularis and I get very painful ulcers on my ankles. If anyone knows more about how to get good treatment please let me know