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Aug 11, 2016 · Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain? in Autoimmune Diseases

Hi got your email about your husband. So sorry. This disease isn’t for the faint of heart.
As for my treatment I take a cortisone shot occasionally. Used to take one every 8 weeks but haven’t had one since September but having a flare up now.
Also I used to take methotrexate (small dose). And tramadal for pain.
I’ve had PMR for 5 years. It’s not as severe but rears its ugly grad occasionally. Ps aspirin helps much more than IBPROVEN or Tylenol. Best wishes.

May 30, 2013 · pmr in Bones, Joints & Muscles

Have had PMR for nearly 2 years….am on methotrexate (15mg) & a cortizone shot every 12 weeks. Am wondering if anyone has severe hot flashes followed by freezing to death….am 68 yrs. and way passed menopause. could it be related to pmr or to meds do you think?

Jan 16, 2012 · PMR is my new diagnosis in Autoimmune Diseases

Hi, Sorry I’ve not replied for awhile….I had a very bad week last week….was in bed for 2 days with pain. Finally got going somewhat on Wed. I also feel like my muscles are turning to mush!…Did I mention I’m having Knee replacement surgery in a couple weeks…the 26th. I’m really ready to get it repaired but am nervous about the PMR acting up. Oh well, I don’t really have a choice so I just need to be brave! No, I don’t work…..I was a teacher until this year and retired. I sure do miss the kids and others I worked with but I just couldn’t commit to a whole year with this health thing going on. lucky I’m on Soc. Sec & Medicare I guess. Don’t worry about exercising too much…my dr said to do what you feel like doing…even just a stroll around the block is helpful… Have a good week.

Jan 6, 2012 · PMR is my new diagnosis in Autoimmune Diseases

Hey Dyn-Dee…My worst pain used to be in my hips and knees but lately (2mos) it’s been in my shoulders. The last couple of weeks it’s in my wrists and hands…really difficult when it flares up.I’m not on cortizone…my dr didn’t want to go down that road b/c it’s so difficult to get off ( more aching as you reduce the dosage as you’re experiencing). I’m only taking tylenol most of the time but I do occasionally take tramadol ( a non-narcotic pain reliever). On the BAD days I’m really limited…Oh, I forgot to mention, I am taking low doses of Methretrexate …7mg’s pr week. It takes several months to take effect and I’ve been on it since Oct and it’s starting to help a little…in that the BAD days aren’t as often. This is a weird but awful disease. I keep trying to be optomistic and tell myself this is not terminal and others go through a lot of worse things…but it is really hard to live with. Praying for you.

Jan 5, 2012 · PMR is my new diagnosis in Autoimmune Diseases

You’re welcome…..I havn’t tried a massage but I do think it would help.. I also have foot & let cramps. Don’t know what the cause is but I try to do some stretching before I go to bed and also massage my feet with lotion before bed. Hang in there. thanks,

Jan 1, 2012 · PMR is my new diagnosis in Autoimmune Diseases

Hi I have had pmr for 6 months now and it seems to be getting worse. I’m taking low dosage of methethexate ( 5mg pr wk) and it doesn’t seem to be doing much good. But my Dr says it takes several months to kick in. I am usually so stiff and sore exercise is very difficult. I am trying to do yoga and it helps quite a bit.I’m frustrated also…can’t seem to get answers. hang in there. nancestl