About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (8)

Sep 25, 2017 · Hypothyroid & Postural Tachycardia Syndrome in Autoimmune Diseases

Hi Marcelle,
So much has happened since this post for my daughter we are now dealing with ITP, EDS along with the POTS snd thyroid. As for the pain we tried all pain meds and none worked. We do have imitrex when the migraines are real bad, but we ate lucky enough to live in a state where marijuana use is legal so I got Sophia a medical card for CBD oil. It is the only thing that help with the pain. As for pots all we can continue to do is fluids and salt but sadly nothing is teally helping and Sophia cant work either; were trying to get disability for her now. This autoimmune disease is horrible. I joined dysautonomia international to try and spread the word to help our kids more. Best of luck to you and your dsughter
Donna

Apr 12, 2012 · Hypothyroid & Postural Tachycardia Syndrome in Autoimmune Diseases

we are doing that. Pretzels are bought in bult, good old cosco, and she drinks as much as a teenager remembers to. Thats for the confirmation of the salt and fluid, and hope of a light at the end of the tunnel

Apr 12, 2012 · Hypothyroid & Postural Tachycardia Syndrome in Autoimmune Diseases

Hi Susan, sorry the delay in response. How did everything go for your daughter at the Mayo appointment?
I agree with you about the whole when they feel tired and awful not walting to exercise. Heck, just getting up to go to school is a work out. 🙂
Best of luck to you

Jan 4, 2012 · Adult ADHD in Mental Health

My husband and daughter both have inatentive ADHD. My husband was just diagnosed with ADHD because of our discovery with our daughter. i can tell you since he was diagnosed and is getting treatment his depression has improved. From what I have found out in all the classes I have attended and on line chat, ADHD people experience depression because they are always down on themselves and they feel like a failure. I know with treatment and a lot of positive reinforcement for them they are doing great. Good Luck

Nov 8, 2011 · want to talk about depression in Depression & Anxiety

My oldest daughter is 13yrs old and has inatentive ADHD and suffers from depression from it. The depression is mainly because low selfesteem and being so hard on herself and being so upset that things aren’t working out in school. When she first came to me and told me it hurt to hear but I was so glad she came to me and told me that she was feeling sad so that I could get her the help she needed, and so I could be the parent she needed, but to be honest I knew. Depression affects everyone in the home and it changes the way you normaly act. I commend you for looking for a group to talk to, but I think you need to also talk to your parents. I bet they already know.

Oct 12, 2011 · Hypothyroid & Postural Tachycardia Syndrome in Autoimmune Diseases

We have been doing fluids for 3yrs now and still not much of a help, the only thing that has stopped the vomiting and helped the dizzyness is the Meclizine, and that only has to be used during cold season. Do you know of a Ped dr that specilizes in Pots and autoimmune her in Portland Oregon…. Because sadly her doctors have been no help it has been me doing all the research and bringing it to them.

Oct 12, 2011 · Hypothyroid & Postural Tachycardia Syndrome in Autoimmune Diseases

sadly we are in the learning phase just like you with our daughter. at this point the only thing helping her is Meclizine and sadly her endrocronologist could not giver her extra advice. Would love to hear what you find out. I do know extra fluid helps her to and proper sleep too.

Oct 7, 2011 · Hypothyroid & Postural Tachycardia Syndrome in Autoimmune Diseases

Hi, My daughter was diagnosed with hashimotos hypothyroid autoimmune disease when she 11 yrs old. Around the same time of her thyroid going completly crazy she was suffering dizzyness issues. They believed that once they got the thyroid under control with medication the dizzyness would become managable as well. Here we are 3yrs later still dizzy and finally have a name for it, they call it POTS for short but no answers as of yet on how to help her. Ran a slew of tests to only find her thyroid numbers are under control right now and her heart is fine. Right now we are giving he Meclozine at night when she goes to bed so that when she awakes the dizzyness is more managable. Anyone else out there dealing with this and what have they done to help you????