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Mon, May 18 12:53am · Neuropathy: Anyone have any experience with gabapentin? in Neuropathy

I was taking 1800 mg. a day for my SFN diagnosis. But Gabipentin had bad side-effects for me. My skin developed painful rashes and discolored my skin. I cut the GP back to 1200 mg a day and have not that much of a skin problem. I don’t really know if GP helps with my symptoms or not of if it is the natural supplements I am taking. But my SFN is doing a lot better with fewer serious night attacks

Fri, May 8 4:06pm · Living with Neuropathy - Welcome to the group in Neuropathy

Good grief, you are really suffering horribly. When I have my small fiber neuropathy attacks the nerves are jangling all over my body as well, from my hair foliciles to the toes of my feet. These attacks are generally at night while I am in bed. Some places on my body does feel like some body is pushing in s giant pin in to my flesh. In the day I don’t get such attacks. I do get such attacks in the groin area as well.
I take Gabipentin, 1200 mg a day. I don’t like this drug’s side-effects, my skin gets blotchy and painful there and really irritates me. I actually cut back from 1800.mg. A day. A company called Life Renew have two supplements I take: Nerve Renew and Nerve Renew Optimizer( 100% alpha Liporic Acid) and that helps me but I am looking for suggestions from others on what they do to get a reduction in the symptoms we suffer. Move forward Sunflower and keep inquiring.

Wed, Apr 29 7:50pm · Living with Neuropathy - Welcome to the group in Neuropathy

I take Gabipentin(terrible side effects appeared on skin. A terrible pain rash up and down both arms and on my shoulders. But also blame those skin rashes on my neuropathy attacks that just under the skin and eventually the skin is damaged
I take Nerve Renew and Nerve Renew optimizer
(Which is 100% Liporic Acid) They help some but I still have quite a bit of pain and the symptoms. I want to see what other people are doing to help themselves.

Wed, Apr 29 7:37pm · Living with Neuropathy - Welcome to the group in Neuropathy

I was diagnosed about four months ago but had been suffering before that for quite awhile. I took all the tests over a two month period of time to finally got an official statement from my neurologist that I had SFN. So ok Doc you now know what I have so what is my treatment program? Here it is. Take Gabipentin meds and maybe some Liporic Acid pills and adjust your life to live with its consequences. Not a very optimistic prognostication. I have done what he has suggested and just get worse and worse. I am looking forward to what I can learn from this support group to help me.

Tue, Apr 28 10:39pm · Living with Neuropathy - Welcome to the group in Neuropathy

My name is Craig,
I have SFN and it is extensive over my whole body, including my scalp and hair follicles. Over time it has played havoc with my skin on my arms, neck and shoulders. The skin is discolored and burns like having a sunburn. It is very uncomfortable.
The brunt of my attacks are at night after I have been in bed and asleep for about 1 hr. Than when I re-position myself in bed the discomfort starts. A hot burning sensation all over my body. Everywhere. It is horrible. Sleep is difficult. The next day I am drained and don’t start to recover till mid morning and know I will face the same thing again when I retire for the night. Is there anyone out experiencing the intensity of such attacks of SFN in their lives? kcshoemaker