It’s my understanding that one of the drugs we are taking…. rifampin I believe, can cause low blood counts. One of Dr. Gwen Huitt’s videos from National Jewish Health addresses this.
Member has chosen to not make this information public.
Member not yet following any Pages.
I’ve been thinking about posting a question about fatigue. I also have low white blood counts. You have been on the antibiotics for one month longer than I have, and I am tired ever single day. Drug days are definitely a bit worse than my off days. I’ve never been a napper but I am now! I guess if this had to happen, experiencing during COVID-19 isn’t so bad since I really can’t go anywhere or do anything exciting anyway. So, I accept my naps and enjoy biking and gardening on my non-drug days. It’s daunting to think about how long we’ll be doing this, but I’m happy to know there may be an end in sight! Hope we can hang in there like all the others in this group. Their support makes a difference👍
Wed, Jun 10 7:58am · Just started big 3 for MAC: Questions about dosing and more in MAC & Bronchiectasis
It is my understanding from my infectious disease doc that MAC is chronic and progressive, but they wanted 3 consecutive positive samples prior to treating.
My husband has been in contact with Dr. Joseph Falkinham, a national expert, who shared a 12 page document (revised 11/20/19) on reducing exposure to NTM. As a MAC newbie, I found it to be the most specific and comprehensive information I have read to date. If people are interested, what is the best way to share this document? One of the many topics he addresses is traveling and he mentions a water bottle study. In a follow-up communication he identified the water bottles as LifeStraw, Mountop, and SteriPen, all available on Amazon. If there is a way to make this available on this site with everyone, please let me know. Thank you all!
Thank you for taking time to respond. You made my day!!! I will definitely watch the NJH link and continue my NTM education. I have so many appointments coming up and I will be sure to ask. So far, I think my treatment is going as well as can be expected and I am thrilled about that too. I'm sure I will continue with more questions until I get this all under my belt. You rock as a mentor-thanks Sue. Nancy