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3 hours ago · I wish I felt a little better. Discouraged. in MAC & Bronchiectasis

It’s my understanding that one of the drugs we are taking…. rifampin I believe, can cause low blood counts. One of Dr. Gwen Huitt’s videos from National Jewish Health addresses this.

2 days ago · I wish I felt a little better. Discouraged. in MAC & Bronchiectasis

Thank you Terri! That’s a good reminder about the potting soil…. I definitely think that’s how I got this in the first place!

4 days ago · I wish I felt a little better. Discouraged. in MAC & Bronchiectasis

I’ve been thinking about posting a question about fatigue. I also have low white blood counts. You have been on the antibiotics for one month longer than I have, and I am tired ever single day. Drug days are definitely a bit worse than my off days. I’ve never been a napper but I am now! I guess if this had to happen, experiencing during COVID-19 isn’t so bad since I really can’t go anywhere or do anything exciting anyway. So, I accept my naps and enjoy biking and gardening on my non-drug days. It’s daunting to think about how long we’ll be doing this, but I’m happy to know there may be an end in sight! Hope we can hang in there like all the others in this group. Their support makes a difference👍

Wed, Jun 10 7:58am · Just started big 3 for MAC: Questions about dosing and more in MAC & Bronchiectasis

It is my understanding from my infectious disease doc that MAC is chronic and progressive, but they wanted 3 consecutive positive samples prior to treating.

Tue, Jun 9 12:04pm · Reducing Exposure to NTM in MAC & Bronchiectasis

Reducing Exposure to Nontuberculous Mycobacteria (NTM) by Joseph O. Falkinham, III Ph.D. Revised 11/20/2019

Here you go-I think it worked! Nancy

Tue, Jun 9 6:34am · Reducing Exposure to NTM in MAC & Bronchiectasis

My husband has been in contact with Dr. Joseph Falkinham, a national expert, who shared a 12 page document (revised 11/20/19) on reducing exposure to NTM. As a MAC newbie, I found it to be the most specific and comprehensive information I have read to date. If people are interested, what is the best way to share this document? One of the many topics he addresses is traveling and he mentions a water bottle study. In a follow-up communication he identified the water bottles as LifeStraw, Mountop, and SteriPen, all available on Amazon. If there is a way to make this available on this site with everyone, please let me know. Thank you all!

Sun, Jun 7 1:14pm · More Water Related Questions in MAC & Bronchiectasis

Thank you! This very much appreciated…. just when I think I have learned something there is more to know!

Sat, Jun 6 3:10pm · More Water Related Questions in MAC & Bronchiectasis

Hi Sue,
Thank you for taking time to respond. You made my day!!! I will definitely watch the NJH link and continue my NTM education. I have so many appointments coming up and I will be sure to ask. So far, I think my treatment is going as well as can be expected and I am thrilled about that too. I'm sure I will continue with more questions until I get this all under my belt. You rock as a mentor-thanks Sue. Nancy