I'll pray for you. This stuff ain't much fun is it.
Keep searching for answers. God bless.
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palmtrez123, my ENT stated that there are several medications in the same class of drugs. My ENT and pharmacist checked my other medications to ensure that it would not interact with my smorgasbord of meds. Just a thought. Also, when he scoped my throat,. My vocal cords were severely irritated, which is why he told me to gargle everytime (to get the inhalant medication rinsed off of the cords). He also mentioned that I get a bronchoscope done. I think I will once I see if these meds work.
I researched everything that could cause sob. My symptpms somewhat matched esophageal and throat conditions. Therefore I thought I might have the gerd causing issues along with possible stenosis of the throat due to being intubated so many times. I still might be right on the gerd irritating the esophagus. I'm losing confidence in my Gastrointerology people. They can't get their diagnosis pr reports right. Even my pulmonologist and the ENT specialist seem perplexed by their clinical impression. Anyway, the ENT guy seems to be on top of things for now. I'll stick with him for sure but may switch to another gastro specialist.
Hi palmtrez123, I have posted about my sob a week ago as well. I also have severe asthma and gerd (which they initially said it was Barretts and I still think it is). Anyway, I have had endoscopies, ct scans, I've been prescribed everything under the sun with my asthma (as my pft show moderately severe obstruction) to no avail. None of my asthma meds work with improving my breathing. Anyway, yesterday I went to see an ENT and he scoped my throat because I was concerned that it may have something to do with trachea stenosis or possibly a tumor. After scoping my throat, he said that I have chronic fungal laryngitis most likely as a result of taking all of my asthma meds (the inhalers I'm talking about). He told me to make sure and not only rinse my mouth (which I had been doing) but also gargle my mouth out with water thoroughly after each use of any inhaler. He also put me on Fluconazole 100mg (generic for Diflucan) taking two pills the first day and one pill for the next nine days. I took my first dose last night, and fill a little better. I hope this works but I encourage you to see an ENT and have your throat scoped. I have learned that inhalers can reek havoc on our throats. (Catch 22- we are darned if we use them and darned if we don't). God bless and don't give up.
I plan on attending a support group soon. I have a co-worker who travels about 90 minutes to take in a meeting for caregivers. We plan on going together one of these weeks. My wife's medicare doesn't kick in until December. I plan to check out home health services, along with any other help we can get when the time comes. I plan on being proactive and remodeling my bathroom, making it handicap accessable. I can do the work myself, which will save money. I also plan on moving laundry on the main floor, eliminating going in the basement, where the electrical panels/breaker boxes are. Besides, she is going to have balance issues down the road (she doesn't.nwed to take a header down the steps). Alot to do. This website is awesome as it makes me more aware of what nneds to be done, what to expect, and just knowing that we're not alone in our struggles. 😀
Thank you for your reply. I am a research nerd. I think it goes along with my profession. I hope someday, they will find a cure. I just pray that God will comfort my wife and also give me strength to love her through every challenging stage and symptom.