About

First Name
Kari

Last Name
Ulrich

City
Albert Lea

State/Province
MN

Country of Residence
United States of America

Posts (404)

Thu, Feb 7 6:43pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@chicken although I did not have laparoscopic the patients I have spoken with have had an overall faster recovery period in regards to incisional pain and hospital recovery; however, the long term recovery was very similar to open in that is was at least 6 months before the whole digestive system and eating returned to normal. Recovery is a very slow process with MALS and when you think about how long you live with the symptoms it is no surprise it would take a considerable amount of time to get functionality back. The biggest challenge after surgery is eating, because you don’t feel pain after eating you tend to overeat (or eat a normal meal) and your body is not use it. The best advice I can give you is to eat small frequent meals for awhile. I hope this helps! Keep asking questions!

Thu, Jan 31 6:44pm · Arteriovenous Malformation (AVM) Survivors and side effects in Stroke & Cerebrovascular Diseases

I have had change of taste in foods years ago, but it was not contributed to anything vascular. I thought maybe I was having a TIA as I having other strange symptoms. My neurological exam and work up were normal. Following this post. Thank you for sharing your experience.

Thu, Jan 31 6:39pm · Arteriovenous Malformation (AVM) Survivors and side effects in Stroke & Cerebrovascular Diseases

Welcome @mockinbrd we are happy to have you here, you are not alone. I know you will get a lot of insight and support in this group. I have a small AVM that was discovered several years ago that found while monitoring for my vascular disease. It was very scary when I was told… honestly at times, even though mine is small and has not changed significantly there is always an underlying fear. I believe it is a good to know so you can prevent future problems. I look forward to what others have to say and know I am thinking of you.

Thu, Jan 31 6:11pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I know there is others who have had lap robotic surgery and it was successful :). I am just not familiar with it personally.

Thu, Jan 31 6:09pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Each person is different, there have been many success stories. I believe starting with a less invasive approach is always good if your surgeon is familiar with MALS. The recovery can be long and very gradual no matter what approach is taken. Also of you have any other diagnosis, how long you have had the stenosis, the degree of stenosis… there are many factors that contribute to the success rate. I have never regretted my surgeries, each improved my quality of life. I hope this helps some.

Thu, Jan 31 6:03pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@chicken, unfortunately there are different theories on the cause of symptoms and more research needs to be done. You are correct it is the ganglion nerves. If your surgeon is familiar with this technique and has a good success rate that is first hurdle. There are many sucess stories that we in MALS Pals and here never hear about, so keep that in mind when you are reading through patient experiences.

Thu, Jan 31 5:56pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I would ask your surgeon how many they have done via robotics and their success rate. I wish I was more familiar with that procedure in MALS.

Thu, Jan 31 5:53pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Depending on the suspected cause, for MALS it is a diagnosis of last resort, so a comprehensive GI work up is needed. There are other diagnosis that can cause symptoms. I think this is a great resource:https://rarediseases.org/rare-diseases/median-arcuate-ligament-syndrome/