About

First Name
Kari

Last Name
Ulrich

City
Albert Lea

State/Province
MN

Country of Residence
United States of America

Posts (444)

6 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

HEDS?? Hypermobile EDS???!!! I have that. May I ask why you are not a surgical candidate? Is it due to poor healing? I would love to hear more about your experience if you would not mind sharing it with me.

6 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I agree with you 100 percent!! MALS patients should consult a dietician before and after surgery … and if not a surgical candidate a dietician can help. So many of us suffer from malnutrition without even realizing it.

6 days ago · Fibromuscular dysplasia (FMD) in Heart & Blood Health

For those of you with FMD, how are you doing? Any new news?

6 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Today I have been thinking about support from friends and family? Outside this group, do you feel you have the support you need? Many of us still struggle years after surgery with symptoms, I know I have. I am so grateful for the surgery, and do not regret it at all, however I find I have not received the aftercare I needed from my healthcare system. I believe so much more can be done. Would love to hear from others when you have a moment.

6 days ago · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@jmmb how are you doing? I have been thinking of you.

Fri, Aug 9 12:28pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Welcome Jessica! Good to have you here! Sounds like you have had a long road to diagnoses! The pain can be so frustrating, especially after eating and exercise! For me that continues to be a problem, although surgery gave years of being mostly symptom free! Please ask any questions!

Fri, Jul 26 11:07am · Fibromuscular Dysplasia, MALS, Grieving the loss of your physician in Heart & Blood Health

@cindybeckwith1 welcome to Mayo Clinic Connect! I was diagnosed about 10 years ago, the journey has been one of ups and downs. Definitely could not have made it through without the help of other patients. I have FMD in my carotids, renal and femoral arteries. I have had celiac bypass twice for MALS. How are you doing? How long have you been diagnosed? Look forward to hearing from you!