First Name

Last Name

Albert Lea


Country of Residence
United States of America

Posts (424)

Mon, Apr 8 11:52am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Just to keep everyone up to date: Mayo Clinic Rochester just sent me consent for MALS research in the mail. I believe it is for patients that have had surgery at Mayo. It had many quality of life questions about pre and post surgery, in addition to symptoms. I hope this gives you all hope like it did for me. The more research the better. I will keep you updated if I hear anything. Also, I will be going to a conference in Dallas, Texas this week called Healthevoices to learn how to better advocate for all of us. I may not be on as much during that time Wed-Sun this week. Please know I will be thinking of you- Healing Hugs, Kari

Mon, Apr 8 11:46am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I have POTS, so I find myself craving salt often!

Mon, Apr 8 11:44am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@ukmalsman thank you for posting, I have not. I hope they see your tags and feel up to giving us an update! What is going on with you?? I am so sorry to hear your health has been struggling!!

Mon, Apr 8 11:35am · Arteriovenous Malformation (AVM) Survivors and side effects in Stroke & Cerebrovascular Diseases

@mockinbrd Thank you for lurking, thank you for posting and updating us on your AVM. I wish I could reach through the internet and give you a hug. I lurk too… sometimes that is the only strength I have. Sending my love and positive thoughts for healing. I will hold off on asking you questions, but when you have more strength would like to hear about your experience and deficits. I know it took all of your strength to post today. <3

Thu, Apr 4 11:53am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@tutogrl Yes!! I cannot wear belts, I eat laying down sometimes… I often when sitting have my knees up to my chest. I wear low rise pants because I cannot handle anything on my tummy!

Wed, Mar 20 5:58pm · mild gastroparesis with severe symptoms! in Digestive Health

Never used Pinterest for recipes – GREAT idea! Thank you.