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1 day ago · Having trouble keeping your balance? in Healthy Living

Thank you so much for all of your information. I am so confused, though: I have some similar symptoms, but then I also have some not mentioned. I have no pain, no spasticity; but I’d do get sudden spontaneous shocks up my spine that threaten my balance, and I become very stiff (feel like a statue) when I am chilled. My core shivers. I wonder if I should try to get in to Mayo. My current neurology specialist has only treated one other patient with an elevated GAD Ab titer. O

4 days ago · Having trouble keeping your balance? in Healthy Living

I really appreciate your attentiveness to me, and your attempts to help me. However, no where in this extensive article does it mention SPS, diagnoses with an extremely elevated GAD antibody. I don’t believe any of the diseases or conditions listed are accompanied with that finding. I need to find something that corrects that inhibiting antibody.. and corrects my proprioception, specifically so that I am able to golf.

4 days ago · Having trouble keeping your balance? in Healthy Living

I do not get dizzy/. I can stand perfectly still, but don’t dare try to take any steps, in which case I stiffen up and fall. I just stand there waiting for someone – anyone – to give me an elbow for security. Then my body relaxes and I can walk very easily.

4 days ago · Having trouble keeping your balance? in Healthy Living

I am not experiencing simple balance issues: I get sudden, unprovoked, unexpected static sensations accompanied by rigidity. I have to suddenly force my upper body forward, all the way to placing my hands on the ground or around my ankles, to prevent falling straight over backwards like a statue. This happens when I am standing still, talking to someone.

4 days ago · Stiff Person Syndrome in Brain & Nervous System

Why is that funny? I think talking to others with SPS might come up with ways to deal with our balance issues.

6 days ago · Stiff Person Syndrome in Brain & Nervous System

I wish we could establish a method of discussion other than all of this typing; e.g. arrange a meeting place, a secure method of getting phone numbers via a Mayo facilitator, etc.

6 days ago · Stiff Person Syndrome in Brain & Nervous System

I was diagnosed with SPS with the finding of an elevated GAD antibody (1,451), My antineoplastic antibody titer was negative, as well as a normal colonoscopy, a negative breast biopsy, normal full spine MRI, negative head MRI, and several referrals to vestibular rehab, a spine specialist….I think that’s all. I was not referred to an oncologist.

6 days ago · Stiff Person Syndrome in Brain & Nervous System

I had my appointment with the neurologist at UW on Thursday, and she increased my IVIg to every 6 weeks. Hopefully there will not be another shortage.

No: My only symptom is loss of balance especially when walking outdoors: slants, curbs, gravel. I can walk 3 miles in 45 minutes with the use of walking sticks though. No pain. No startle reflex. If I stop to chat with someone, though, I am really stiff until. I walk a few steps though. Oh! And being cold really causes me to stiffen up. I feel like a statue.