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Nov 1, 2019 · Ewing Sarcoma in fibula of 16yo girl in Cancer

@colleenyoung – she has begun her Chemo, shes on nearly a dozen different drugs. Shes at CS Motts Hospital in Ann Arbor, MI. Shes got a strong demeanor about the whole ordeal, she'll pull through I'm sure, i'm just worried about the effects of the treatment. The doctors have told her that her taste buds will change, but that she just needs to eat.

Oct 15, 2019 · Ewing Sarcoma in fibula of 16yo girl in Cancer

I actually already messaged @madstrong, I’m hoping to get a response as I can see she’s been in a very similar situation.

Oct 15, 2019 · Ewing Sarcoma in fibula of 16yo girl in Cancer

Can someone please offer some advice to my cousin. She is 16, and has been diagnosed with Ewing’s sarcoma, originating in the fibula. She begins chemo today. I would really appreciate hearing some input from someone who has been in this position.

Oct 1, 2019 · Ewing's Sarcoma in Cancer

Hi @madstrong can you please provide an update on your situation? How is your daughters health? How have the treatments been working? A family member of mine (16 years old) has been diagnosed with Ewing Sarcoma, with the tumor growth occurring on her fibula.

Sep 25, 2019 · 12yo male diagnosed with seizures but experiencing strange behavior in Epilepsy & Seizures

He was on on Keppra for 18 months (full dose for 12 months and half does for 6 months) and stopped 6 weeks ago. He has had multipe EEGs, doctors have confirmed nothing suspicious in any of them, and have given no specific diagnosis. His last seizure was in March of 2018, and the seizures then consisted of lost speech, speaking nonsense, eyes rolling back, and shaking. This new episode he had the other day was the only one that consisted of the bright light & sweating. Thank you in advance for your help!

Sep 25, 2019 · 12yo male diagnosed with seizures but experiencing strange behavior in Epilepsy & Seizures

What was the diagnosis and medication if you dont mind me asking?

Sep 25, 2019 · 12yo male diagnosed with seizures but experiencing strange behavior in Epilepsy & Seizures

12yo male with no family history of chronic seizures was diagnosed by his doctor with chronic seizures. His last episode was him sitting at a dinner table, when all of the sudden he experienced what he believed to be a bright light coming towards him. He completely zoned out, terrified of this light approaching him, and was drenched in sweat in the following minutes. He did not experience a seizure at this time, as his family was nearby him and were able to speak to him and calm him down. Has anyone had a similar experience? This is very strange behavior, and we believe there may be something else to it other than chronic seizures.

Some additional information: the child also experienced a very short migraine like head pain immediately after the “bright light”.