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Sat, Jul 11 8:23am · Writing to Your Donor's Family. in Transplants

Good that you feel better. My donor family wanted to hear from their son’s recipients, especially his heart. Mine was the only note they received. But some families want no communication/connection. I think when they attended the Gift of Life, they realized what a gift they had provided, whether it was my liver, another’s kidney, heart, etc. they attended the recipients’ celebration with our family.

Sat, Jul 11 7:51am · Writing to Your Donor's Family. in Transplants

Hello. I received my transplant in November 2017. After the four month period dictated by the organization, I got a nice card and started a letter. I rewrote/restarted quite a few times. I got it back through the proper channels. It was edited and deemed perfect, except included were two photos – one of our family on Easter showing all of us with matching tee shirts with the caption “Team xxx(my nickname), the back saying “Team xxx(the hospital where the transplant took place) and the title caption “Miracles do happen”. The one on the back could not be sent. Through a quirk, my donor parents had it on their table, their daughter had seen the card and noted she had seen the photo some where else. Our eldest daughter had posted on a business twitter. The donor’s sister contacted our daughter at 5 one morning and our daughter called us. What nervous energy that call created! Do I contact them, do I want to contact them? I spoke with my nurse coordinator. She said this happenstance occurrence was indeed rare, but I was “the driver in charge” from that point. Long story, we met and it was extremely helpful to the father, for it had been a suicide. They came to our Gift of Life celebration and found it extremely helpful and that celebration was 22 months post. We are not close and our paths would never has crossed otherwise, but what a connection! I think of them, their son and their loss daily and thank God for their selfless generosity. My advise to you – do it! They may or may not want to hear from you. Start your note with the last sentence from your post. Good luck! Aren’t we in a fortunate club?

Sat, Apr 25 5:05am · Transplant anti-rejection medications. What's your advice? in Transplants

I am 2 years, 4 months post liver transplant. I, too, do not sleep during the night, with frequent (3-4) trips to urinate. The water consumption has not made a difference, I did not know that the tacrolimus and nocturia might be connected. It has just become a part of “transplant life”. I take 2 mg am and pm, along with celcept. Come to think of it, the waking up/not resting well has gotten worse since they have upped my tac dosage. It is a constant juggling act, moving puzzle pieces. I fully trust my Mayo, Jacksonville, team and thank the Lord and my donor daily for this “GIFT OF LIFE”!

Wed, Feb 12 8:46pm · Liver transplant support group in Transplants


Wed, Jan 29 12:54pm · Sigmoid colon resection: What to expect for recovery? in Colorectal Cancer

Fortunate for me, other than a few episodes of very loose bowel movements I learned things not so agreeable, slowly readied into diet and now am pretty restrictive free. Good luck.

Fri, Jan 17 9:32pm · Living Donor Kidney surgery next Tuesday: Any advice? in Transplants

Wow! I am a liver recipient. We have a few kidney transplant patients in our group. Two are living kidney recipients, one was like your exchange donation. So very interesting. Are you going to be at Mayo? Our group meets at Cannady building, first floor at 11 am, Tuesdays. Join us, if you wish. Thank you for your very generous gift! Toosie

Sun, Jan 12 7:15pm · Sigmoid colon resection: What to expect for recovery? in Colorectal Cancer

I would enjoy hearing others stories or encouraging others who are waiting or recuperating.