About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (14)

Sat, Aug 31 12:19pm · Small Fiber Neuropathy BOOK! in Neuropathy

Yes I know . Good luck with your health. By the way .. the books title sounds so scary..I think I may be too nervous to read it . Having a lot of anxiety .
Lynn

Sat, Aug 31 10:42am · Small Fiber Neuropathy BOOK! in Neuropathy

Thank you . I’ve had many tests this summer with no known cause for my symptoms of foot pain, achy hands, and prickly stingy forearms. EMGs were fine . Sr said he doesn’t think I have SNF because I don’t have any burning symptoms.
Will vitamin shots help you?
Thanks for replying.

Sat, Aug 31 9:27am · Small Fiber Neuropathy BOOK! in Neuropathy

Hi .. I hope you’re feeling well and you won’t mind me asking what your symptoms were/are from SFN. I suspect I have it and scheduled a biopsy although my neurologist doesn’t feel it’s urgent . If my biopsy is positive I’ll buy the book.
Hope to hear back from you.

Fri, Aug 30 7:14pm · Living with Neuropathy - Welcome to the group in Neuropathy

No EMG ruled it out. I read that prickly and stingy feelings are symptoms of SNF. I’m pretty sure I have it . Than you anyway.

Fri, Aug 30 5:47pm · Living with Neuropathy - Welcome to the group in Neuropathy

No I only feel some little quick jabs in my feet. I asked because I met with my neurologist this week and he told me my EMGs were fine and I do t have PN. I was confused and asked him about SNF and he said I don’t think you have that either because you don’t have any burning symptoms. Well I have prickling and stinging in my forearms so I asked for a biopsy. I have to wait till 10/15. He also commented that it makes no difference because treatment would be the same . I still want to know . I asked you because I was sure you didn’t have any burning but still have SFN.

Fri, Aug 30 5:01pm · Living with Neuropathy - Welcome to the group in Neuropathy

Hi John . Just curious.. does your SFN give you any burning sensations or make it uncomfortable to put anything on your feet?
Lynn

Wed, Aug 21 3:04pm · Living with Neuropathy - Welcome to the group in Neuropathy

Thanks I did get to look at testimonials. Your success has encouraged me to try it. There really isn’t anything else except meds. Just now realizing the seriousness of this disorder.

Wed, Aug 21 12:34pm · Living with Neuropathy - Welcome to the group in Neuropathy

Hi John . I’ve tries to navigate The Protocol website but haven’t been to successful. I’m wondering if you and others experience negative side effects to the supplements? I’m petite and wondering how dosages can be the same for everyone.