My name is Krista, and my husband Ryan has had his T-cells harvested, awaiting infusion until pancreatitis/liver function improves. We are approaching the one-year mark since diagnosis, and it seems as though there is always something unexpected around the corner.
We have 2 young kids at home, and a number of friends who will be sharing caregiving duties for Ryan during treatment. We have learned through other hospitalizations that the kids need me more than he does! We also have grandparents and others who will stay with them when I need/want to be with Ryan.
I’m particularly interested in hearing from anyone with children who has done CAR-T, as well as those who have had multiple caregivers. Our plan is to stay at the Gift of Life Transplant House. Can anyone share from experience there?