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Tue, Jul 30 9:33pm · MAC nodules in MAC & Bronchiectasis

Hi! I'm glad I saw this post! I live in Hoover Al, the Birmingham area. I have not found any Doc's in Birmingham that really know how to treat this. I had a Pulmonologist that sent me to an infectious disease Doc. We did the triple drug therapy for 2.5 years and infection was still active. At this point they were throwing up their hands..I got on Google and looked up Mayo. I was planning on Mayo in Jacksonville…then on this group, someone mentioned a specialist in Atlanta, a lot closer for me than Jacksonville.
This is my new Doc:
Dr. Colin Swenson, Emory at St.Joseph's
Pulmonary and Critical care medicine.
5673 Peachtree Dunwoody Rd.
Suite 502
Atlanta, GA 30342
Fax 678-843-6870
He specializes in Bronchiectasis and MAC!!!!
You should be a lot closer to Emory. They are wonderful!! You will need a referral from a Doctor and he's pretty booked up but if you are really ill tell the person scheduling you and they will work to get you in sooner. They did that for me as I needed medication and had no Doc!!
He sees many "distance " patients. I've seen him twice so far and it's been a blessing.

Mon, Mar 11 9:20am · Only read if open to alternative therapy for MAC in MAC & Bronchiectasis

@kristiemlove, Hi Kristi! Thank you so much for sharing your Moms incredible story!! I recently started using colloidal silver..a bit nervously..but I have been able to get rid of pain I've had in my left lung for the past 3 months.
A CT scan a few weeks ago showed disease progression, and all my Docs were giving me at the time was Clarithromycin which was not touching it.
I'm actually scheduled to see a new Doc at Emory in Atlanta in a few weeks. I dont know if I should tell him what I've been doing. Are your Mother's Docs aware of what she has been doing??

Thu, Feb 14 4:11pm · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

Wow Terri! I just saw this post..missed it!!! I'm so sorry to hear your struggle! I also have a few things in common with you! My husband and I are in the middle of getting our house ready to sell..and build a smaller retirement home. Part of constant stress to me is all the things I need or wanted to do in this house have gone by the wayside because I'm sick all the time. My husband still works full time and is not really good at keeping up with things. He can fix all sorts of things..but not house stuff..that was always my job. I would paint, lay tile ,do the flowers and shrubs outside. I'm just going to be so happy to get out of here! We have a travel trailer that wrre going to put on our land and live there while we renovate and sell. Then we can build.
I've always been an artist, and that's been put back too. Jewelry is another love, but I plan on trying to do it. At least I can sit!! Only problem is when the brain is exhausted!
Were hoping to have a garden also but we have to keep it simple. Have you tried Amikacin???

Wed, Feb 13 1:42pm · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

@heathert Hi! I know my mom was very depressed. We tried to get her to come to Alabama and move in with me or my sister. We knew we could get her much better. Even though she hated her husband, she refused to leave. She just really wanted to die and I don't think her Doc had given her an antidepressant. He was horrible!!

Wed, Feb 13 12:22pm · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

@windwalker one more thing about my Mom..before she remarried, she had a Pulmonologist!!! who diagnosed her with copd and fibrotic lung disease. She had also had part of a lobe removed because she had been coughing so hard she ruptured and was hemmoraging. She had to be transfused.