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First Name
Robert

City
Sun City West

State/Province
AZ

Country of Residence
United States of America

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Posts (4)

Tue, Jul 16 10:06am · Mantle Cell Lymphoma in Blood Cancers & Disorders

Hello lottajoy,
My Experience: I was diagnosed with MCL in 02/2016.
I was admitted to the hospital with a blood platelet count of 20 after feeling fatigued. My treatment consisted of 5 days in hospital with chemo each day then I was released and had chemo once a week for 8 weeks. The chemo consisted of Rituxin and another chemo that I don't recall, looking for the info but cannot put my hands on it but this treatment worked and I have been in remission for 18 months. I recently went into relapse and am now on Imbruvica and it is showing good results. I am fortunate that insurance is covering this drug because it is very expensive. I did not have any trouble taking the chemo which seemed like a walk in the park when comparing it to the radiation I experienced in 2013 for esophageal cancer which is completely behind me. Please make sure you have a doctor that you feel very good about, it took two trys for me. Look forward to seeing where you go with this and will be watching for you. Best Wishes!
I am a 74 year old male in otherwise good health and I am active in tennis and working out at the gym, plus I watch what I eat.

Wed, Mar 13 11:23pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Hello, I have Mantle Cell Lymphoma, just heard a mention of indolent MCL. I did not know it existed. Another example of who you talk to and what info comes out of the conversation. I have been happy with my Dr. and I feel he is doing his best but it seems to be a learning process for both patient and
Dr. I now have a new dilemma. I am relocating to Arizona from the east coast and need to find insurance and Dr.(Kaiser Permanente is not in Az.) Need
some advice but not sure where to look for it. Dr. is primary and whatever is needed for insurance. I was diagnosed 2 years ago and after treatment I am
in remission. Thank you

Wed, Jan 30 5:10pm · Mantle Cell Lymphoma in Blood Cancers & Disorders

Hello @harvie, I have been treated and am now in remission. Looking for anyone with this condition to share notes. I just relocated to Az from the east coast and would like to find a doctor so I would not have to fly back and forth. Any info would be helpful.

Tue, Jan 29 10:33pm · Mantle Cell Lymphoma in Blood Cancers & Disorders

Anyone out there with this condition