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Fri, Feb 22 2:28pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

@elsie37
As a 52 yo woman with ductal and lobular atypia, schedule for DMX next week, I have to draw upon my background as a Financial analyst, and behavioural analysis , to make sense of that disconnect. It’s all about the risk analysis. And human tendency.
Study after study shows we humans are LOSS averse. Not risk averse. In fact we will take on additional risk in order to not ‘lose’. (Eg – someone at Vegas, already ‘down’, will DOUBLE DOWN (thereby taking on MORE risk ) in the HOPES of not ending up LOSING. )
We woman do NOT want to lose our lives. So we’ll take in the risks of surgeries to avoid that loss. The Drs? It’s not THEIR life they are pondering the potential loss of, so they completely objectively simply look at numbers and statistics.

Wed, Feb 13 1:40pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

@monical you’re welcome love. Xxxx my best to you too.

Wed, Feb 13 6:49am · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

@cindylb …. btw…. if you still have that prosthetic and would like to consider sharing it on….. please consider joining Sisterhood of Traveling Mastectomy Products closed group on FB. There’re women there who WOULD def LOVE it 😍 🙏🏼😘

Wed, Feb 13 6:46am · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

@cindylb ….. good q :). And hugs back xxx
One must consider too some of the potential risks of tattoos (allergy to dyes etcetc – rare … but…… hey, we’re all familiar with just how meaningless THAT term might be if we’re ‘the’ 1 🤷🏻‍♀️😊)….
For ME…. I find the tattoo option empowering, adorning, Body art. And not at all something I’d feel the need to hide….. a way of taking back proud control. All of this journey can be a mind game, yes? What stories we tell ourselves(and BELIEVE) to either boost or diminish self confidence and esteem. And how much/where we get to buck (oftentime ridiculous) cultural expectations/‘norms.
If I wore a sheer, MAYBE I’d wear a cami to layer???? Probs not. I see this as no different than ANY woman’s choice (with breasts, or nipples, or tats, or NOT…) ….. am I comfortable with that sheer/white AT THAT moment, for THAT occasion, or not? Sometimes (being me 🤷🏻‍♀️😊😬) I ‘d likely intentionally wear something ‘showy’ of the tattoo art precisely TO invite discussion and awareness…. and buck silly societal ‘norms’ ….other times….. yeah, NOT.
When you had breasts, the decision was the same, no? Were u comfortable with the sheer/white garment….. or not??? (Hypothetical q for YOUR introspection, not necessarily answering ME 😊😊😊😘🙏🏼💓)…. xxxxxxxxx infinitely

Tue, Feb 12 8:57pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

I’ve chosen NOT to do nipple delay (saving) surgery and instead have them removed too. Why? Excuse all cancer risk. And. Why have an extra surgery??worry about necrosis, scar tissue, asymmetrical positioning or nipple falling below center of the implant etc? Added bonus ? No more padded bras to conceal nipples beneath certain tops. I’ll do tattooing eventually – which I find feminine, sensual and too empowering and powerful.
I chose NOT to simply monitor – I wish To live. Out loud. And not worry. And not take Rx meds and have to have MRIs every 6 months. And all that stress. My personal choice is to take these measures now. Vs 49/51 chance of doing it anyway AND having to fight cancer too.
Please understand this is all merely my 2cents worth. You’ll find YOUR path. My v best of wishes darling xxx

Tue, Feb 12 8:47pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

@monical …. FB support groups I’ve found helpful xxx

Tue, Feb 12 8:44pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

Walked this path just this past December. Stereotactic failed to get the calcifications seen on Mammogram. ADH found incidentally in the ‘missed’ biopsies. Had savi scout and lumpectomy Jan 3rd. Calcifications benign but more ADH AND ADL.
diffuse enough to put my risk of development into cancer at 49%. I too am negative for BRCA. Have only a paternal aunt who died at 32.
I’ve elected to have prophylactic bilateral mastectomy, including nipple removal. Above pectoral round implants. (I’m v athletic – need my muscles more than my breasts). With Aloderm (cadaver donated skin complex to buffer between my skin and the implant. I’m thin – no fat layer to either graft from, or cushion the implant). Non textured (aka smooth) implants as I don’t wish to take on the possible additional risk of contracting lymphoma (seemingly associated with textured implants). I would’ve preferred teardrop shaped implants(I think) but they’d have to have been textured in order to stay in place. And (see above on textured) Surgery set for March.

Lots of researching. Interviewing multiple surgeons. Introspection.
It’s the right choice for me.
And rest assured you’ll find the right one for u too.
There are a number of FB closed groups that offer terrific support too. Lmk if you’d care fir the names.
Hugs. Keep breathing.

Wed, Feb 6 7:54pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

@colleenyoung … I’m about to have DMX for ADH and ALH ….. would love to connect to that discussion also. I dont See any ‘VIEW AND REPLY’ button. Just a REPLY…..???