Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (3)

Oct 24, 2019 · Multiple Myeloma in Blood Cancers & Disorders

I just spent a half hour posting a reply and was disconnected so I’ll try again. I have MM stage 3. I had just climbed to the base amp of Mt. Everest, 17,600 ft. in September 2018. I was slicing up logs on Nov.1st, 2018 and heard a couple vertebrae pop. I saw a chiropractor who fractured 3 ribs. On Dec. 21st 2018 I was put in the hospital for Kidney Failure only functioning at 6%. Clogged up with the Calcium that my cancer had eaten lesions in my vertebrae. I had a Blood transfusion and Dialysis. I could only walk with a walker. I did Dialysis 3 times a week for all of Jan. 2019. I was lucky that my Kidneys began working again! I then went through 3 cycles of Chemo Therapy. The first couple of cycles were Velcade, Cytoxan, and Dexamethasone. I was lucky to get a grant from the Revlimid Company and did a cycle of; Carfilzameb, Revlimid and Dexamethasone. Aurora could only get the bone cancer to about 40%. By the way, the Celgene Co. charges $18,000 a month for 21pills. Three weeks on of one Revlimid pill and a week off. Lucky I got a year grant! I’ve had 12 fractures in my upper spine an shrunk about 2 inches. The fractures started healing up. I then switched to Froedtert Hospital, Milwaukee, to get a second opinion. They told me about Kyphoplasty and Vertebroplasty. I had the cement put in the L2 vertebrae and immediately got off the Oxycodone every 3 hours. Still on the 125mcg/hr Fentanyl patches. I had a Stem Cell Transplant in July 2019. Got out in 2 weeks and a day. Shortest stay possible for an inpatient Transplant. A rough recovery especially for the first weeks. I still pushed my self to walk a mile of laps every day except for the first 2 days. Now I’m down to only 5% cancer and they give me about 3 more years. I’ve had gene deletions of 17 P before the Stem Cell Transplant. After, they’re seeing 1Q gene deletions. I’ve gained back 5 lbs. of the 20 I lost. Now I’m about 140 lbs and trying to get some muscle back. Thank god for the technology and drugs available. I’m ready to take a vacation! Larry

May 12, 2019 · Multiple Myeloma in Blood Cancers & Disorders

Hi again Robinraig, I’m actually taking The Revlimid for 21 days and a week off. What I was going to say was that Specialists seem to be more on top of options. And I would definitely recommend starting Chemo right away.

May 11, 2019 · Multiple Myeloma in Blood Cancers & Disorders

I was diagnosed with Stage 3 Multiple Myeloma in December 2017. Mine is one of the most aggressive forms of MM. I was in Renal Failure and did Dialysis three times a week for all of January. Luckily my kidneys are now functioning on their own and no longer need Dialysis. I’m being treated at Aurora (Chemo) and switching over to Froedtert (possible Vertebraoplasty) in Milwaukee, WI. I had a couple of vertebrae fractures in the upper Thorasic area, back in December that have healed some and now have about fractures in the lower Lumbar area, L2,L3, and L5. I was not told of Kyphoplasty or Vertebroplasty options until they also started to heal. Radiation was not a good option because it makes the bones even weaker. In January I was put on a VCD Chemo regiment of; Velcade and Cytoxan three times a week, and Dexamethasone once a week. A genetic test was done in March in preparation for an Autologous Stem Cell Transplant (ASCT) and I found out that I have several gene deletions. The Chemo regiment appeared to stop working and I still had 30-40% of cancer in my bone marrow. The ASCT is also on hold to see if a new KRD Chemo regiment of; Kyprolis, Revlimid twice a week, and Dexamethasone, once a week, will get the cancer below the 30% range. I went without Chemo for three weeks between Chemo regiments, and shouldn’t have, and took a drastic decline. I went through a lot of emotional turmoil adjusting to the first week of Revlimid. Now I’m doing much better. Hopefully with another month and a half I’ll be able to have the ASCT which could give me a couple more years to live.