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Posts (5)

Mon, Mar 11 8:17pm · Worsening diplopia with no explanation in Autoimmune Diseases

Hi @beka i am happy to help and answer any questions! I believe my double vision was different, although it’s been about 30 years since I had that symptom. It was side by side and I think it went away when I closed one eye. The acute kidney failure came out of nowhere and it was diagnosed as lupus nephritis; glomerulonephritis. I’ve been on cell cept, prednisone, and plaquneil since and am doing much, much better, although my labs have been up and down over the past year.

Mon, Mar 11 6:19pm · Worsening diplopia with no explanation in Autoimmune Diseases

Definitely talk to a neurologist about Myasthenia Gravis (MG). That’s where all my issues started-double vision and extreme extremity weakness when I was 17: after the birth of my first child (28), I was diagnosed with Sjogrens Syndrome and had major flare ups after the birth of my next two children. Then at 47 while going thru menopause I was diagnosed with Lupus and RA: I went into acute kidney failure (stage 3, almost 4) at 49. It’s been a rough road but find a good doctor to help you manage it all. The Mayo is fabulous if you can go there! I’ve noticed that a lot of my issues revolved around times in my life where I had hormonal changes. I hope you find answers! God bless!

Nov 8, 2018 · Thymectomy and autoimmune diseases in Autoimmune Diseases

Hi John, thank you for your reply. I'm wondering if having a thymus gland removed causes autoimmune diseases. I'm wanting to know if there are others who have had their thymus gland removed and then later been diagnosed with autoimmune diseases. I'd love to hear what diseases they have been diagnosed with and how they are doing. I was diagnosed with Sjogrens.Syndrome first, although I mostly had joint pain that would come and go with flare ups. Just recently the Sjogrens attacked my kidneys and The nephrologist said that if I had waited much longer I would have been on dialysis. It's been a tough year but the meds have kicked in and am stabilized and doing good.

Nov 7, 2018 · Body odor without sweat -- Sjogren's Syndrome? in Autoimmune Diseases

I was diagnosed with Sjogrens at age 28, after the birth of my first child. I haven't experienced the strong body odor you mentioned and, until recently, I hadn't experienced extreme dry eyes and mouth. I am on lots of meds currently and was wondering too, if it's the meds or Sjogrens causing the dryness. One thing I wanted to share with you about the Sjogrens is that after the birth of each child anf through menopause, I had horrible flare ups. It seems hormone fluctuation is a trigger. Wishing you the best.

Nov 7, 2018 · Thymectomy and autoimmune diseases in Autoimmune Diseases

I had a thymectomy in 1985 when I was 17 years old to treat myasthenia Gravis. I went into remission about 4 years later. After the birth of my first child in 1996 I was diagnosed with Sjogrens Syndrome and since then Rheumatoid Arthritis and Lupus. Has anyone else who has had a thymectomy for myasthenia Gravis been diagnosed with autoimmune diseases?