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Sep 29, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@jenniferhunter Thank you so much for the information. I, unfortunately, do not live close to a Mayo Clinic hospital. The closest would be in Cleveland, Ohio about three hours away. I am hopeful that my docs will figure this out. I will start mapping my pain and neuropathy for my next appointment. The neuropathy pain has been intense in my left hand this week. Not sleeping well due to the pain.

Thanks again!

Best regards,
Becki

Sep 24, 2018 · Small Fiber Neuropathy in Neuropathy

@sita I’m so sorry you are having all of those issues. I only have arthritic pain and severe (to me) neuropathy in my left hand. I do at times have balance issues.
For the stomach issues ask for a CT scan with contrast and have them look for intestinal ischemia. That diagnosis means that your intestines are not getting enough blood supply.
My mom had that disorder and if they had found it earlier she may be alive today.
She had diarrhea & trowing up. In an 8 month period she lost 75 pounds and her doctors didn’t test for that disorder. Instead they told her it was in her head and to see a counselor. She even did that about 3 times before the counselor told her that there wasn’t anything wrong with her mentally.
I hope things start looking up for you soon.
Regards,
Becki

Sep 23, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@jenniferhunter First of all I am so sorry about your parents passing. I also feel bad for you because your dad put you in an almost impossible position while you were dealing with such pain in your own body.
My mom had been sick for a couple of years but not to the point that my step dad needed my help.
She could still walk, at times with the use of a Cain, bathe and do a little bit, not much around the house.
She went to our local hospital on Tuesday, July 10th because she hadn’t slept at all the night before because of stomach pain. She passed that Friday, the 13th of July from intestinal ischemia.
By time the diagnosis was made it was too late.
Now I think that God took her before I started with this pain. She couldn’t stand what the RA was doing to me. Now with the neuropathy and neck pain I am pretty miserable.
I am hopeful that the neurologist can help me.

Regards,
Becki

Sep 23, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

I feel like one of the post directed at me was belittling my diagnosis that I currently have. Is this site only for those with more severe problems than DDD & & RA in multiple levels of the neck?

Thanks,
Becki

Sep 22, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@cyme I’m so sorry you are going through such a rough time.

I hope that you get some relief soon.

Sep 22, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

John, I don’t even have an appointment yet. Apparently, a good one lives behind me. 🙂 If I don’t hear from my primary by Monday at noon I will be calling them.

Sep 22, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@oldkarl Thanks for the information. I am very comfortable and believe in my current neurologist. If he doesn’t do further testing after seeing this report I will definitely go to the Mayo Clinic if necessary.

Sep 22, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@mihaiotto My original neuropathy was in my hands and feet. Neurologist said of no known cause. Recently, this week, had x-rays of cervical spine and they found multi-level arthritis and degenerative disc disease.

You may want x-rays at your next appointment just to see if there is anything going on there.

Just a thought.