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Mon, Apr 27 3:31pm · Vestibular Migraine with associated tactile illusions in Brain & Nervous System

Boston Eye and Ear diagnosed my wife with VM a year ago after several hours of testing, so we felt we were on the right track. The oto-neurologist there did feel the VM could be impacting the trigeminal nerve system also, which could account for my wife's odd tactile sensations. Other neurologist however have questioned whether this is actually what's going on, so we are not certain she is on the right track. Boston is too far away for us, so she is now seeing new primary care and specialists at Dartmouth Hitchcock Medical Center (NH) and they have been great. Multiple disciplines are involved and they are taking her symptoms seriously. Her symptoms are relentless 24/7, so we desperate for some relief for her after 2 years of suffering.

@jenniferhunter has suggested resources to us regarding interaction of vestibular and trigeminal nerve systems that have been informative.

Mon, Apr 27 8:34am · Vestibular Migraine with associated tactile illusions in Brain & Nervous System

Hi. Some of my wife's symptoms are also "off the wall". They include sensations of metal and string in her mouth, and a metal band around her head, as well as a sense of undulation throughout her body. Are you experiencing anything like that? Thank you – David

May 19, 2019 · Vestibular Migraine with associated tactile illusions in Brain & Nervous System

Thank you Jennifer.
I have started to check these links.

David

May 16, 2019 · Vestibular Migraine with associated tactile illusions in Brain & Nervous System

My wife (age 67) was recently diagnosed with chronic Vestibular Migraine disorder. For the past year she has experienced constant (24/7) vertigo, along with false sensations of objects in her mouth, a metal brace around her face, and an undulating energy field around her. The diagnosing otoneuroligist believes the VM could be impacting the trigeminal nerve system also, which could explain the facial and energy field sensations. She has another neuro appt coming up soon, and has not yet begun a treatment for this. Ativan gives her an hour of relief a couple times a day. Has anyone else experienced or heard of these odd tactile sensations being associated with VM? Thx!

Aug 12, 2018 · New Daily Persistent Headache in Chronic Pain

My wife has constant daily head pressure/headache for several months. We believe it may be NDPH, which was suggested by an ER doc – but her current neurologist (#3) believes it is instead a pinched nerve and that surgery on the cervical spine may offer some relief. An odd feature of this is that she feels tactile sensations (floating pieces of metal) in her mouth that cause her a great deal of discomfort as well. We have not heard of anyone experiencing that with NDPH, but we wonder if the pinched nerve might be causing it as well. We would welcome hearing from anyone else who may have a similar experience.