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Cancer, Kidney and urinary tract disorders, Men's health issues

Posts (226)

Thu, May 7 7:59pm · Tips: Traveling to Mayo to get medical care safely during COVID-19 in COVID-19

@colleenyoung At this time I have had all my treatment at my local hospital – Sanford in Sioux Falls SD. In the last 8 weeks I have been involved with radiation, ER, I have been admitted to the hospital, the outpatient care center (infusion center), several testing areas, had a tunnel cath put in and have been in several doctors offices in various buildings. All employees wear masks. About 70% of patients wear masks. There are shields in front of all check in desks. I use hand sanitizer everytime I enter a building and everytime I leave. I don't touch any of the door handles. I could take my mask off when I was in my hospital room, but any time they took me out into the hallway to go for a test, I needed to wear my mask. I haven't had to travel, stay in hotels or eat out yet. I am scheduled to go to Rochester in July. We are trying to figure out how to deal with that.

Fri, May 1 5:34pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

@fassbinder Nothing goes the way I figure. When I got done with radiation, I figured I would be able to rest and relax at home and take some time to heal. No more trips to hospital for radiation. For the last few days, I did rest and relax. But it was in a hospital bed instead of at home. And now that I'm home, instead of going to the hospital for radiation treatments 5 days a week, I get to go to the hospital for antibiotics infusions 7 days a week.

I hope and pray things are back on track for your husband and that he can continue to recuperate from his Whipple.

Wed, Apr 29 1:04pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

@colleenyoung My wife brought me into ER Saturday night with nausea a and chills. The did several blood tests including a blood culture, gave me meds for the nausea and sent me home. Sunday after lunch the hospital called and said I had an E. coli blood infection. They told me I had to come back to be admitted the hospital. They ran numerous tests and can't find the source of the infection. They put in a tunnel cath this morning and are talking about giving me antibiotics daily for 2 weeks. If they can get everything arranged, I will be going home this afternoon

Wed, Apr 22 8:13pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Today was day 25 – my last radiation treatment. For the past 5 weeks, they have been frying my internal workings with high powered X-rays. Now begins a 2-3 month period allowing the body to heal. Once the healing process is complete, they will do a scan to see how successful this treatment was.

Mon, Apr 20 11:23am · Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

@gfmf My nephrologist has had me on sodium bicarbonate pills for several years. I take two 650 mg pills with each meal. She says it slows the deterioration of the kidneys. Because it is basically baking soda, my insurance won't cover it. I have to pay around $20 for a 3 month supply. Something must be working because over the last 5 years my GFR has ranged anywhere from 10 to 20. Not on dialysis yet.

Mon, Apr 20 8:24am · Pancreatic enzyme replacement in Pancreatic Cancer

@beachdog I know someone who uses this product. He uses it because of the cost of Creon.

Mon, Apr 20 8:18am · Struggling to eat with pancreatic cancer: How do you manage? in Pancreatic Cancer

@beachdog I have not tried anything but Creon, but GoodRX has a list of drugs for pancreatic enzyme replacement therapy

https://www.goodrx.com/pancreatic-insufficiency/drugs

Sun, Apr 19 9:11pm · Pancreatic enzyme replacement in Pancreatic Cancer

@beachdog My doctors started me on Creon immediately after my Whipple. I have been on it for 6 years now. I asked my nurse practitioner at Mayo about switching to Pure Encapsulation or other over the counter enzymes. She checked with a pharmacist. I was told that I could try other enzymes but I should not use anything that is not USP certified. I was checking not because I could not tolerate Creon but because of the cost of Creon. I have had to adjust my dosage from time to time, but I have used nothing but Creon and it has worked for me.