About

First Name
Marvin

Posts (57)

1 day ago · Renadyl in Kidney & Bladder

I have no experience with Renadyl.

5 days ago · Lighten Your Limbs With Friends in Diabetes/Endocrine System

I am excited to make it through the 12 week program and will continue to exercise. You talk about the coming of spring…We're supposed to get 6 to 8 inches of snow tomorrow. Sounds like a good day to stay inside.

Thu, Jan 10 2:42pm · Lighten Your Limbs With Friends in Diabetes/Endocrine System

It's surprising how fast the time goes and I have an incentive to keep exercising. Hoping to be put on the active list for a kidney transplant in June. I have someone who is getting ready to be tested to see if she can donate a kidney. I want to be as healthy as possible.

Mon, Jan 7 9:26pm · Kidney transplant - The Journey from the Donor's Side in Transplants

@contentandwell I don't think it's sunk in yet. It doesn't seem real at this time. I have been communicating with her through Messenger because she was at work. She will be home tomorrow night and I will be able to call her. Nothing can happen before June 5. That is the 5 year anniversary of my cancer surgery. If everything works out, things will start happening in the summer. It is very exciting!

Mon, Jan 7 3:48pm · Kidney transplant - The Journey from the Donor's Side in Transplants

@jodeej @contentandwell I've been praying about a donor for a while. Last Wednesday, I posted on Facebook that I was looking for a donor. I received a message this morning from someone who is willing to donate a kidney. Thanking God for answered prayers.

Sat, Jan 5 9:17pm · Lighten Your Limbs With Friends in Diabetes/Endocrine System

Yes, right after New Year's, there are all kinds of ads about weight loss diets and exercises. "I lost X pounds on this or that diet." I laugh and think, "I lost 60 pounds on pancreatic cancer, but I don't recommend that diet plan to anyone." And yes, now that I've made it this far, I will complete this 12 week plan and then continue to walk.

Tue, Jan 1 11:49pm · Kidney transplant - The Journey from the Donor's Side in Transplants

@contentandwell I was diagnosed with stage II b. The surgeon removed 46 lymph nodes during the surgery. They found cancer in only 1 of the 46. With pancreatic cancer, far too often it is not diagnosed until it has spread through the body. Please keep me informed of your friend's progress. I have a long story that I should tell sometime about how pancreatic cancer has touched my life and the lives of many people around me and about the amazing love of God who has carried me through my trials.

Tue, Jan 1 3:38pm · Kidney transplant - The Journey from the Donor's Side in Transplants

@contentandwell I am not on dialysis at this time, however, the reason I am on the inactive list is because when you have had pancreatic cancer, you have to be cancer free for 5 years before you can have a transplant. At one time, someone told me that the "cancer free date" was based on when I had my last chemo. That would have made my anniversary date December of 2019. Last month, when I went to Rochester for my semi-annual checkup, Oncology told me that the "cancer free date" is based on when I had my surgery. My surgery was done in June of 2014 so June of this year will be my 5 year anniversary. A couple of weeks ago, I wrote 2 letters about looking for a kidney donor. It was always hard for me to ask for help when I was healthy. In the last few years, I have learned to ask for help and accept help when it is offered. But it stills feels very strange asking people for a kidney. Maybe it is time to get those letters out again and review them one more time. I wasn't sure if Facebook was an appropriate way to get the message out, but I see in one of your previous posts that others are using it to inform people of their need. (When I went in for my evaluation, I was told that the wait for a deceased donor was 2 to 7 years.)