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Cancer, Kidney and urinary tract disorders, Men's health issues

Posts (103)

Tue, May 14 4:47pm · How about a laugh, (hopefully) in Just Want to Talk

This woman sure was devious!

Fri, May 10 1:08pm · How about a laugh, (hopefully) in Just Want to Talk

A man and a woman were killed in an accident on the way to their wedding. When St. Peter greets them at the Pearly Gates they tell him that they love each other so very, very much and they would still like to get married. St. Peter says, "Let me see what I can do." He leaves them standing at the Pearly Gates. Peter is gone for a very long time. As they wait for his return, they continue to talk. "We love each other very much and want to get get married, but what would happen if we didn't get along with each other. Would we be allowed to get a divorce?" When St. Peter finally returned, they asked him. Peter was exasperated and said, "It took me 3 months to find a priest in heaven. Do you know how long it will take me to find a lawyer?"

Thu, May 9 6:41am · Celebrating Life after pancreatic cancer! in Cancer

Today is May 9. Five years ago, on May 9, 2014, I was diagnosed with pancreatic cancer. Two days after my diagnosis, my wife and I went to church with our son. On that day the pastor preached a sermon on Romans 8:28. “And we know that all things work together for good to those who love God, to those who are called according to His purpose.” As we left church that morning, we did not know what the future held for us, but we were assured that God would be with us. Three weeks after preaching that sermon, the pastor's wife died of pancreatic cancer. When I told my boss that I had pancreatic cancer, he was concerned because his father died 6 months after being diagnosed with pancreatic cancer. My Whipple procedure was done on June 5, 2014. On that day, my brother-in-law was diagnosed with pancreatic cancer. He lived for another 20 months before the cancer took him. Two years ago, my cousin was diagnosed with pancreatic cancer. He died 10 days later. My grandpa died before I was born, but last year I found out that he died of heart failure a few days after having surgery for pancreatic cancer. When I was diagnosed, the 5-year survival rate was 5%. Now it is 9%. Today, by God's grace and because of the help I received from the doctors and nurses at Mayo, I am alive and celebrating life!

Mon, May 6 8:56am · Living Donor Process in Transplants

@rosemarya June 5 is special to me for another reason. It is the anniversary of my Whipple procedure. When we came to Rochester in August for my initial kidney transplant evaluation, we were too busy to stop at Gift of Life. When we came in December for my PET scan for my cancer, my wife and I toured the Gift of Life House. We are hoping they will have a room available for us when I get my transplant. As a donor, are my sister and her husband eligible to stay at the Gift of Life?

Sun, May 5 3:09pm · Post Transplant Symptoms in Transplants

@rosemarya So happy for you that your evaluation went so well. Like you, I appreciate how quickly you can get test results when you use the app. I also am amazed with modern medicine. I remember watching my heart valves open and close during my stress test last August. Thanks for your post. It is great to know that Mayo is just as thorough after your transplant as they are before your transplant.

Fri, May 3 12:00pm · Stage 3 CKD in Kidney & Bladder

@gingerw The biggest changes are diet and energy level. Ten years ago I was diagnosed as a Type II diabetic. After a long learning curve, I adjusted well to the diagnosis. Through exercise, diet and metformin, everything was under control. I actually enjoyed the foods I was allowed to eat. Then came pancreatic cancer and complications from the chemo. Now I am a Type I diabetic and have stage 4/5 CKD. I've had to give up a lot of the foods that I have enjoyed. I have to watch my intake of phosphorus, potassium and sodium. I try to balance my diet between CKD and diabetes. Maybe I would do better if I watched my diet better, but I've decided that I am also going to enjoy my life. I take lots of meds to compensate for what my kidneys can no longer do or to slow down the deterioration of my kidneys. My nephrologist suggested that I look into a kidney transplant. I wondered if I wanted to go through that since things have been holding steady for so long. She reminded me that I have been on the edge of needing dialysis for a long time and anything could push me over the edge at any time. I was evaluated at Mayo Rochester last August and am on the transplant list as inactive at this time. Coming to Rochester in June for another checkup. If I am still cancer free I will be placed on the active list. My sister is coming later in June to see if she qualifies as a donor. Just waiting to see how things progress.

Thu, May 2 10:24am · Stage 3 CKD in Kidney & Bladder

A couple of year ago, my wife temporarily needed dialysis after her heart valve replacement surgery. She had it done in her neck. I am glad I have my fistula, because after watching her, I don't want it done in my neck.

Thu, May 2 10:20am · Stage 3 CKD in Kidney & Bladder

@kamama94 My surgery was done as an outpatient. It was done 3 1/2 years ago. I don't remember having to change any dressings. I went back to see the surgeon 4 months after my surgery. At that time, he told me I had to continue "exercising" the fistula, but it really didn't grow much after that. Mine is in the upper left arm. I was told that the first choice is in the lower arm, but the veins in both of my lower arms were shot from all the chemo I received. Most of the time, it doesn't bother me. Once in a while, it feels like it is pressing on the muscles in my arm. The one thing I didn't expect was that in order to protect the fistula, I cannot wear my watch on my left arm and you are never supposed to draw blood or take your blood pressure using that arm. Because the fistula is in my left arm, I am not supposed to lay on my left side when I sleep at night.You are supposed to check it every day to make sure there is a thrill or a pulse. With mine, I can look at it and see it pulsing. But when you put your hand on it, you can easily feel the thrill. (I have no idea why it is called a thrill, but I like to say that dialysis nurses get a thrill out of feeling my arm.)