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Oct 9, 2018 · seizure watch-monitors in Epilepsy & Seizures

My daughter used smart-monitor. She stopped using it cause it was very sensitive. She couldn’t clap, wave to anyone with out it sending an alarm. But I know people who have an Apple Watch which the patent of the smart monitor watch, and have no issues.

Sep 2, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

For one, is her Dr. a epilepsy specialist? If not you need one, 2ndly I’ve never heard of them putting anyone in a medical induced coma to stop seizures, there are lots of websites such as Epilepsy foundation, that may have answers or suggestions for you. Also how long did they try each med? Reason I ask is Some meds take weeks/months to get to the right level to stop them. I hope things turn out for your granddaughter.

Jul 23, 2018 · My son’s seizures are always 25 to 30 minutes after he wakes up. in Epilepsy & Seizures

Need more info, son’s age, what is his epilepsy diagnosis, and same questions as @galords? From what I know that is pretty common, if they have Juvenile Myoclonic Epilepsy

Jul 5, 2018 · Second surgery for my 28 year old son. Advice needed please. in Epilepsy & Seizures

Sarah, I so agree….you have to open and sometimes point blank with your fears, questions etc….my daughter has tonic clonics but are controlled. In any form of treatment it is your and your sons right to make the decision Doctors are opinions are options, if you don’t feel right then seek another opinion. Never enter into a treatment plan unless you or both feel ok with it…

May 23, 2018 · seizure watch-monitors in Epilepsy & Seizures

The smart-monitor watch goes by movement. My daughter has absence, Myoclonic jerk & tonic clonic seizures. My daughter has not had a seizure since getting the watch. But we did a make shift shaking as if she was having a seizure….after 30 secs it sent a text message with location & after another 30 secs sent a phone call to my phone…. most seizure watches act the same, I know a few go by heart rate as well….this one also allows you to cancel the alarm and tells the receiver it was false alarm…bad thing is you can only have 1 person to call but like 5 ppl to text and you need your smart phone within at least 15 feet

May 23, 2018 · seizure watch-monitors in Epilepsy & Seizures

My daughter has Tonic Clonic, she hasn’t had one since we got the watch but she shook her arm like she was having one and it took 30 secs to text me & 30 secs later to call me

May 23, 2018 · seizure watch-monitors in Epilepsy & Seizures

I got my daughter a smart-monitor watch for $149 + $35 activation (which sometimes can be waved) & $30 a month

May 23, 2018 · seizure watch-monitors in Epilepsy & Seizures

Most will alert you when they start having a seizure, around 30 secs.