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Posts (74)

May 16, 2018 · Headaches Without A Name in Chronic Pain

@lioness, @gail, @oregongirl, @parus, @jewel8888, and all others who have helped me with this pain. I haven;t been ablate participate much in past several days as I have been at hospital,lab,dentist,eye dr, ENT, and pain clinic. I am currently in a trial for drug. for 5 days and in the meantime scheduled for an MRI and other tests. They were not pleased by the challenges to my gait and coordination and want to be sure that they are simply a part of my autoimmune problems. I m going to try to rest as much as possible while this is all scheduled and taken care of and I wanted to thank all of you and let you know what is happening. You have all been so supportive. I will be in touch when I know more. Hopefully I’ll be back soon in better shape and able to help once again.Gem..

May 14, 2018 · Sjogrens in Autoimmune Diseases

@windwalker I have a large family, but I look different from most and had always wondered where my appearance came from. Then I came across a gggrandmother who is ¾ cherokee and although my skin is English like my mother, I looked so much like her that I couldn't believe it. I loaded the two pictures one of her and one of me on top of each other in a program that i have and changed the transparency and there we were a perfect match! I find genealogy very interesting. I started years ago and collected documents as i went along. I love to restore old photos too.

May 12, 2018 · Headaches Without A Name in Chronic Pain

@oregongirl I ’m really limited on what I can take. because I am diabetic…some tylenol, a little ibuprophen ibuprofen,some gabapentin. I am really senstivie to pain meds, so try to do anything but, unless I have no choice.

May 12, 2018 · Headaches Without A Name in Chronic Pain

@lioness I think Vicks helps too and menthol lozenges. The ENT told me to get one of the allergy meds and “try” it knowing that I have Sjogren’s. I have tried them in the past and been unable to get my eyes open in the morning, they get so dryfrom those meds. Sorry, I don't mean to be grumpy.

May 12, 2018 · Headaches Without A Name in Chronic Pain

@gailb I will do that. Not to worry, my husband will make me (smile)

May 12, 2018 · Headaches Without A Name in Chronic Pain

@lioness Thank you for your suggestions. I have an eye appt Monday and wednesday an appointment with the Pain doc. I have neurologlist that i see from time to time and the pain doc can get me in faster than i can, so I’m going to let him handle that and scedule a scan. The ENT that I had been sent too did not help at all.He said I didn't have an infection..then last night woke up in the middle of the night coughing up what i will call green/brown slime. I think it came from my sinuses draining post nasal. Anyway, now I can't get my anti-bio refilled until Monday..The drugstore is closed on the weekend here.If I have a sinus infection,it i dandy.

May 12, 2018 · Complete Lack of Sleep in Sleep Health

@cliffordjames I would begin with a neurologist( perhaps one who is board certified in sleep disorders) or knows someone who is . A neurologist will know where to begin for sure. Many hospital even in small cities have sleep clinics now who have doctors and nurses who specialize in sleep disorders. However, I think that you need to find out what event caued this problem in the first place RiGHT NOW..don’t wait. You need to see someone immediately. This is a very dangerous thing. If I were you I would call for an immediate dr. appointment with a neurologist and if you cannot get one , have someone take you to the ER of a large regional hospital. I am really concerned about you and you should be as well. I amso glad that you wrote. Please get cared for today.

May 11, 2018 · Headaches Without A Name in Chronic Pain

@lioness, @oregongirl, @ @gailb,@parus @jewel8888 everyone who posted here.Thank you so much for your great caring hearts. I’m still in pain, and still don’t have the answer, but perhaps soon.I ‘m going back to bed grateful for people who care and understand.. I will let you all know as soon as I know anything and get any real relief. Bless you all.