Very informative and helpful. Thanks.
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I saw that nih piece. I've been collecting info since my diagnosis in early December. (I like to be as informed as possible when talking to my doctor, which may drive him nuts, but makes me feel like I'm a collaborator in my medical care.) I will post after my February retests and doctor visit.
I too have elevated PTH but my calcium levels are normal. Apparently this is called normocalcemic hyperparathyroidism. My primary care doc is an endocrinologist and after a bone density test showed that my bones were losing density (despite doing a lot of weight bearing exercise), he wanted to do the blood test and the 24 hour urine catch which showed the elevated (but not scary) PTH and normal calcium. That was at the end of November and I'm to have a retest early February. A parathyroidectomy may be in my future. I've been scouring the internet to find info about hyperparathyroidism and surgery seems not unusual, even with normal calcium. BTW my D3 is normal.