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Posts (5)

Mar 9, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thanks.
Appreciate the help!
I'll look into it tonight.

Mar 8, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thanks.
I have had 3 pain doctors. The one I have presently is great. He listens and is very pro active. But he has not been successful with my insurance.
I decided today, i will try to find a "patient's advocate" within the health insurance.

Mar 8, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

The more languages I acquired fluently, I find it challenging to slow my thinking process. If there is a device that can type thoughts, I hope it is capable of translating the languages as well. : )

Mar 8, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Sorry, I must be in the wrong group.This was my first attempt a forum.Thought I typed trigeminal nueralgia.
Nevertheless, here is what I know about Anesthesia Dolorosa (AD) . Anesthesia Dolorosa literally means numbness but with  pain.
Having trigeminal nueralgia the medication was not successful. So the the 1st procedure I had was with a gamma knife. This damaged my trigeminal nerve (TN). I have had two other procedures, micro vascular decompression (MVD).My Trigeminal nerve is constantly firing 24/7 now. 
My right (R) lips and R. tongue feel like I've taken a bite of a hot jalapeño.But when I talk, my lips get electrical sensation. This triggers this electrical pulse to travel to my tongue, cheeks, nose and eye. When I wake up in the morning, my pain is quite, till I start talking or eating.I have minor electrical discomfort but if I eat or talk the pain beginnings. My booth upper and lower frontal teeth  feel like a razor is rummaging in my gums.Only the right cheek feels like some one is using a sand paper on it. By the end of the day, my face  feels like I was hit with a 2×4 piece of wood.My right nostril feels enlarged and its burning hot.  Lastly, my poor right eye. The sensation I feel is like I have a fingernail clipping inside. I can drowl, have a runny nose or an eyelash inside my eye and will never feel it. Pain is hard to describe but intensity is not. People can not imagine someone having this amount of pain and look normal. The pain cause an extreme FATIGUE.
Again, I apologies for posting in the wrong area. I will try again finding the right group. Just thought I share and seek advice on how to fight the heath insurance for a brain stimulator? Also inquire what type of jobs do most folks still have with trigeminal nueralgia?

Mar 7, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

New here. Long time with TN & now anesthesia dolorosa. Had gamma knife and 2 MVD procedures. Varies medication but severe allergic reaction. Taking Vicodin just to tolerate life. Taking several naps throughout the day so I don't repent on Vicodin.
My insurance (BC & BS) said no to brain stimulator.
I have tried PT, Accupuncture, diets but the constant burning, stabbing,sand paper grinding on my right lips, cheek, nose, gums and eye is horrible. Hurts to talk or being on the computer for more than 30 min. Always TIRED even before Vicodin.
I hit a dead end. Presently on disability funds from work. But this is coming to an end. Mutual wants me to get ANY type of work. I was an RN x 30 yrs.
My hope and strength is on God but the pain is unbearable.
Need direction on how to fight insurance and what type of job would be suitable. Also getting social security disability..SSD. But it's ridiculous.
Oh well need to get well to return back to work.
Thx for letting me share