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Tue, May 7 8:25am · Post Interferon Syndrome in Infectious Diseases

HEY EVERYONE!! EVERYONE NEEDS TO TURN THESE DRUGS IN TO FDA ADVERSE EFFECT WEB SITE!! UNTIL WE TURN IN THE S/E THEY DON'T KNOW, I DID ABOUT A YR AGO N JUST WROTE THEM A LETTER YESTERDAY. THIS IS A MUST IF WE WANT TO GO AFTER THEM!!!!! XO

Tue, May 7 8:19am · Post Interferon Syndrome in Infectious Diseases

u r absolutely right!! my life is done n im only 57, 8 yrs post tx. i was a rn n have a mph n cant hardly get out of bed. i feel my life is over with no end in sight, im so sorry that u have to endure this also xo

Thu, Apr 25 1:18pm · Post Interferon Syndrome in Infectious Diseases

hi barbara, these stories r just devastating as is my own. i am 8 yrs post tx n i am mostly housebound also. i have to rest every other hr in order to get thru a day. my immune system was fried n now have CVID with predominant B cell damage, sjogrens syndrome, as u also, i am a rn n have a master's degree but can not remember anything…i mean anything anymore. my bones hurt so bad i lie in bed n cry…especially before a storm. somedays think i would be better off gone…the depression is overwhelming some days!!
I am so sorry that u r going thru this also as i wouldn't wish this life upon anyone. pls keep in touch xo

Mon, Apr 22 10:42am · Post Interferon Syndrome in Infectious Diseases

I too suffer from such bad depression, my immune system was fried so now i have a lifetime of nasty infusions, i was a RN n now can barely survive, im so so sorry that u r going thru such a hard time also. pm me anytime pls xo

Fri, Apr 19 3:37pm · Post Interferon Syndrome in Infectious Diseases

I agree lol my bones r in bad shape n i cry all day from such pain.

Mon, Mar 11 9:18am · Post Interferon Syndrome in Infectious Diseases

Honey I have no clue why no one will help us n it's just depressing

Sun, Feb 10 4:09pm · Post Interferon Syndrome in Infectious Diseases

Hi!! welcome to our hell lol there are a lot of us who figured out it was the interferon/ribaviron…took me 8 yrs. I too took the treatments in 2011 but not the incevick. glad ur here now!! pls feel free to ask us anything or PM me, my name is lisa

Fri, Feb 1 8:15am · Post Interferon Syndrome in Infectious Diseases

lol no worries…highlight my name n it should take u to private message, if not let me know lolol