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4 days ago · Post Interferon Syndrome in Infectious Diseases

Hi!!! I I have cfs and fibro also. i can not work or on most days hardly do anything or i will crash…no energy n have to rest most of the day. this is horrible to live this way. i so glad u found this site…it give us a little validation that we r not nuts

4 days ago · Post Interferon Syndrome in Infectious Diseases

Whom r u talking to??? n why would u be cussing??

Fri, Feb 7 5:30pm · Post Interferon Syndrome in Infectious Diseases

Hi, I still cry when i read these. I had treatment in 2011 n has destroyed my life. PLS EVERYONE…U HAVE TO TURN THESE DRUGS IN THE FDA, THEN CONTACT MERCK AS I AM DOING!!! Pls contact me as i will never give up the fight…i was a RN n have a MPH n now hardly able to function on a daily basis…i feel like i am slowly dying everyday while losing my mind.

May 7, 2019 · Post Interferon Syndrome in Infectious Diseases

HEY EVERYONE!! EVERYONE NEEDS TO TURN THESE DRUGS IN TO FDA ADVERSE EFFECT WEB SITE!! UNTIL WE TURN IN THE S/E THEY DON'T KNOW, I DID ABOUT A YR AGO N JUST WROTE THEM A LETTER YESTERDAY. THIS IS A MUST IF WE WANT TO GO AFTER THEM!!!!! XO

May 7, 2019 · Post Interferon Syndrome in Infectious Diseases

u r absolutely right!! my life is done n im only 57, 8 yrs post tx. i was a rn n have a mph n cant hardly get out of bed. i feel my life is over with no end in sight, im so sorry that u have to endure this also xo

Apr 25, 2019 · Post Interferon Syndrome in Infectious Diseases

hi barbara, these stories r just devastating as is my own. i am 8 yrs post tx n i am mostly housebound also. i have to rest every other hr in order to get thru a day. my immune system was fried n now have CVID with predominant B cell damage, sjogrens syndrome, as u also, i am a rn n have a master's degree but can not remember anything…i mean anything anymore. my bones hurt so bad i lie in bed n cry…especially before a storm. somedays think i would be better off gone…the depression is overwhelming some days!!
I am so sorry that u r going thru this also as i wouldn't wish this life upon anyone. pls keep in touch xo

Apr 22, 2019 · Post Interferon Syndrome in Infectious Diseases

I too suffer from such bad depression, my immune system was fried so now i have a lifetime of nasty infusions, i was a RN n now can barely survive, im so so sorry that u r going thru such a hard time also. pm me anytime pls xo

Apr 19, 2019 · Post Interferon Syndrome in Infectious Diseases

I agree lol my bones r in bad shape n i cry all day from such pain.