hi barbara, these stories r just devastating as is my own. i am 8 yrs post tx n i am mostly housebound also. i have to rest every other hr in order to get thru a day. my immune system was fried n now have CVID with predominant B cell damage, sjogrens syndrome, as u also, i am a rn n have a master's degree but can not remember anything…i mean anything anymore. my bones hurt so bad i lie in bed n cry…especially before a storm. somedays think i would be better off gone…the depression is overwhelming some days!!
I am so sorry that u r going thru this also as i wouldn't wish this life upon anyone. pls keep in touch xo