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Tue, Apr 21 7:49pm · Post Interferon Syndrome in Infectious Diseases

has anyone ever checked ur magnesium?

Tue, Apr 21 7:14pm · Post Interferon Syndrome in Infectious Diseases

hey!! nope, u r not crazy n as time goes by i seem to just get worse ugh

Sat, Mar 21 12:31pm · COVID-19 What do people with immune deficiency need to do? in COVID-19

Hello!!! may i first say pls take a deep breath n breathe. I was just released from a 4-day quarantine in my local hospital. I am just over one week till my next infusion…when i feel my worst, and am fine now. originally went to my PCP for upper respiratory infection n he suggested i go to ED on this past Monday. I did n while waiting, my daughter text me stating she was exposed to ppl whom were positive. I told the hospital that and they swept me away into protocol n did a great job. I myself am also a RN disabled n have a master's public health. n watched from the inside. So, stay home, listen to ur body first a foremost…u know it better than the docs. if u feel u need meds..call ur doc, but otherwise stay home n do ur best…that's all we can do…n pray xo

Thu, Feb 20 9:09pm · Post Interferon Syndrome in Infectious Diseases

Hi!!! I I have cfs and fibro also. i can not work or on most days hardly do anything or i will crash…no energy n have to rest most of the day. this is horrible to live this way. i so glad u found this site…it give us a little validation that we r not nuts

Thu, Feb 20 8:56pm · Post Interferon Syndrome in Infectious Diseases

Whom r u talking to??? n why would u be cussing??

Fri, Feb 7 5:30pm · Post Interferon Syndrome in Infectious Diseases

Hi, I still cry when i read these. I had treatment in 2011 n has destroyed my life. PLS EVERYONE…U HAVE TO TURN THESE DRUGS IN THE FDA, THEN CONTACT MERCK AS I AM DOING!!! Pls contact me as i will never give up the fight…i was a RN n have a MPH n now hardly able to function on a daily basis…i feel like i am slowly dying everyday while losing my mind.

May 7, 2019 · Post Interferon Syndrome in Infectious Diseases

HEY EVERYONE!! EVERYONE NEEDS TO TURN THESE DRUGS IN TO FDA ADVERSE EFFECT WEB SITE!! UNTIL WE TURN IN THE S/E THEY DON'T KNOW, I DID ABOUT A YR AGO N JUST WROTE THEM A LETTER YESTERDAY. THIS IS A MUST IF WE WANT TO GO AFTER THEM!!!!! XO

May 7, 2019 · Post Interferon Syndrome in Infectious Diseases

u r absolutely right!! my life is done n im only 57, 8 yrs post tx. i was a rn n have a mph n cant hardly get out of bed. i feel my life is over with no end in sight, im so sorry that u have to endure this also xo