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Posts (766)

9 hours ago · Tips on minimising withdrawal symptoms from Effexor (aka Venlafaxine) in Depression & Anxiety

Good morning!
So sorry you are still having such a difficult time.
All I can tell you is what my psychiatrist told me…..
I was weaning off the Effexor on the advice of my PCP.
I now know it was too much, too soon and the anxiety came back in droves.
When I got home, my took my regular dosage and for a few days I continued with no success.
The doctor told me that once you start to wean off or you come off, you need to stay away from the med for about 6 months.
I tried other meds, but they did not help.
After about 6 months, I requested trying to go back on the Effexor.
Enough time had passed, so the psychiatrist told me I could.
Although it worked, it was NEVER as good as when I first started with it.
Don't get me wrong, it has kept my anxiety pretty much in toe, but I just don't feel the same way I did when I first was on it.

Good luck!
Ronnie (GRANDMAr)

9 hours ago · Spine Lumbar fusion surgery in Bones, Joints & Muscles

Good morning!
I am so sorry you are having so much difficulty! I had two surgeries, one on my cervical spine and one on my lumbar spine. It is a miracle that after suffering from chronic pain 24/7, for over 10 years, that pain is gone.
When I had surgery on my lumbar, the doctor did something regarding the muscle on my thigh. For me, it was the left side. The pain was worse in the morning when I got up. It felt like spasms. Each morning started with me putting an ice pack on my thigh and groin area (for about an hour). I did not have any screws put in so I cannot address that. However, my doctor was VERY CLEAR that basically, I had to baby myself (my words, not his). No bending, lifting, twisting, reaching, over extending or sudden movements. All of these things can cause issues. Although it's been a year since the cervical surgery and about 7 months since the lumbar surgery, I do my best to continue to follow that advice.
You really do need to see your surgeon for another follow up. Each time I go for a follow up, I have an x-ray to make sure everything is still in place and healing correctly. It took me almost 4 months before all the pain went away. I do understand your situation, but it is important to see the doctor and start PT. The therapist will show you how to move so that you don't injure yourself. He/she will also help you to strengthen your core. I certainly don't want to spend your money, but can you take an Uber, get a friend to drive you or call the doctor and PT to explain your inability to drive or get a ride, they might be able to help you out.
Good luck!
Ronnie (GRANDMAr)

9 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Good Morning!
I've tried to get an appointment at Mayo, in Jacksonville, Florida, multiple times. I've been told the same thing. This last time, I even had a script from my neurosurgeon, but no luck!
Good luck to you!
Ronnie (GRANDMAr)

9 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Good morning,
I don't want to scare you, but MS is a very serious disease! If the doctor thinks you might have it, but won't test for it, it might be time for you to find a new doctor. If you do have MS, your doctor will want to start treating you for it immediately.
I do suggest you find a new doctor!
Ronnie (GRANDMAr)

1 day ago · MEDICATIONS, HELP OR HINDER?? in Depression & Anxiety

I AGREE 100%.
I remember, many, many years ago, a dear one said something regarding all the meds he had to take.
My response…….."I wish they had a pill my mother could take to keep the cancer away and not kill her."

1 day ago · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

Good Morning
At this time I do not feel pain. I take Gabapentin every day, too. I've been taking it for a long time for my spine issues. I don't feel like it helps, either. My brother, who has spine issues, too, takes it and finds it helpful. However, he only takes it as needed. I don't know if that makes a difference.

A couple of weeks ago I went to a massage therapist. He worked hard on me. By the time I left, I could move my toes. It did not last more than a couple of days but it gives me hope.

Best for you…Ronnie (GRANDMAr)

1 day ago · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

Happy St. Patrick's Day
I think everyone is Irish on this day. lol
Anyway, due to having pink eye and just starting eye meds, I'm not going back to read all your posts. So, If I say something you already addressed, I'm sorry!

I've had a sluggish thyroid for years and years. With meds, it has kept it normal. All of a sudden, about 3 weeks ago, I went to the neurologist (will tell you about it in a minute) and she ordered blood work. My thyroid number was way, way, way low. My PCP had me take it again (3 weeks later) and the result was the same. He is reducing my dosage. It must explain why I am so tired and why when I look at food I put on 10 pounds. He will redo the blood work in 3 months after I've had time to get the new dosage. I am hoping it will arrive this week from my mail away pharmacy.

That's the story about my thyroid. Now the shaking. Another story…….
This year I've had 2 spinal surgeries (Feb. my cervical spine and Oct.my lumbar spine). As far as I am concerned they were a success because it too away the chronic pain (24/7) that I experienced for over 10 years, probably closer to 15. Just a couple of months before my lumbar surgery, I noticed that when I sat, I couldn't sway my right foot, lift my toes or move my toe at all. I also noticed that although it was not the same as the right, my left foot did not feel normal, either. My neurosurgeon took ALLLLLLL SORTS OF TESTS and could not figure it out. He said if it didn't improve after the lumbar surgery, he wanted me to see a neurologist.

Not only did my symptoms NOT improve, they were worse. I needed to use a cane to walk and I had s few falls. This is something you don't want to do after spine surgery. Off to the neurologist I went…….

During my preliminary exam she noticed my hands quivered. I did notice that starting to happen, too. My mom, son and cousin also have (or had) quivering hands. It did not prevent any of them from writing or doing anything. As a matter of fact, my mother was a typist and my son does nuclear medicine tests that require him to give injections. Neither had a problem. Then, the doctor looked in my mouth. She noticed the roof of my mouth was quivering, too. I never felt that.

She reviewed my MRI (ordered by the neurosurgeon) and noticed that a bunch of nerves are clumping together. I also still have stenosis. However, NONE of these hurt. The doctor who performed the test said I have SIGNIFICANT nerve damage coming from my lumbar spine and S1. That is all he would say. I meet with the neurologist Tuesday, followed by an appointment with the neurosurgeon. It is my hope that they will be able to give me a diagnosis (more than neuropathy in my feet) and come up with some sort of a plan of action to slow down the neuropathy.

The reason I al telling you all this is because I have some of the similar symptoms and I wanted you to know about who I have seen and tests they performed. Will share more after my appointments; that is if they give me more information.

Happy Sunday……
Ronnie (GRANDMAr)