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Posts (4)

Jan 25, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Please, please, please unsubscribe me to the Mayo connect and support group. I have sent emails, tried to follow the unsubscribe that does not exist, etc. Please, I do not want 20 emails a day.

Jan 23, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

It was just good being done with the meds. Probitotics were very helpful. But all of the meds seem so distant now. IN fact, I had to go into my memory to recall the names. My focus now is on keeping the bronchiectasis from progressing. Thanks and good luck with the treatment.

Jan 23, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I am not on any meds now (except for atrial fib– and the inhalers I have tried precipitate the atrial fib so I just try to keep hydrated and clear the mucous. Actually, I feel good, it is just that I cannot do as much hiking etc. that I have done in the past. However, I am not sure how much age is also a factor. Thanks.

Jan 23, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

My name is Mariah and I have lived with myobacterium avian and bronchiectasis since 2011–and probably a number of years before then. As some have noted, it was a constant cough that took me to my internal medicine doctor who sent me for a lung x-ray. She thought it was pneumonia and so I started on 10 days of an antibiotic. The x-ray was repeated in 6 weeks–no change. So I had an MRI–I was afraid it might be lung cancer, but my internist assured me that the findings did not fit that of lung cancer. My pulmonologist reviewed the various treatments for MAC and I decided to wait. But, after a year and the symptoms becoming worse I started on the 15 month 3-drug regimen to which I was very faithful although I disliked some of the side effects.

I am now living with bronchiectasis and have seen lung function decline although the tests seem to reveal I am doing okay. Last summer we visited Yosemite and Sequoia. The elevation was very difficult for me–the first time that has occurred. I know my tolerance for exercise is much less, but I persist in walking daily, yoga, etc.

I am happy to be in touch with others who have MAC and know it occurs more in women than in men.