Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (9)

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

I am in week 9. I am only not in pain when heavily medicated. The pain has been the same throughout.
I have never done this before but I hope for other suffers they are not alone.
I just don5 understand why I am not better yet. The weakness and muscle wastage I cam cope with

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

6 weeks from diagnosis

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

The pain has been continuous. The pain killers work for 6 hours. I had an MRI and a visit to the Neorlogistat Wellingtons
. They want me back in three month. I am under the care of Andrew Wallace of the Fotrtius clinic in London
He operated on the same shoulder last Feb. Until I went to see him that is what I thought I had. He is top of his field.
He diagnosed me very quickly.
He looks at 2,000 shoulders a year and would see two at most in a year.

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

Merry Christmas

Oct 27, 2018 · Parsonage turner syndrome * in Brain & Nervous System

When looking back on my ordeal, heat was great and knowing what I do now I would have used it more. If you need a good nights sleep then get one or two hot water bottles. I used them all day. My period of pan was just under six months. It did straight after two weeks easy living in on Miami beech. I just want to send my dearest sympathy to anyone going through this as no one really can understand the pain.

Jul 31, 2018 · Parsonage turner syndrome * in Brain & Nervous System

I was sent to that particular Acupuncturist because of her cupping skills. I thought the whole cupping thing was a bit of a novelty at the time, but at that stage I was happy to try anything. I now believe that it was the cupping more than the acupuncture. There was no immediate change until a week after ny third session. I was in my fifth month of pain. Good luck