About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (5)

Mar 14, 2018 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hii I'm from India ..my son was diagnosed with HCM in 2011.. recently he had his 3 rd heart surgery for Arch repair and SAM resection at Kokilaben hospital Mumbai.if u want any other information plz let m know.

Nov 15, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi kanaaz Pereira..he was not having any problem..at regular check up he was diagnosed with some murmur doctor suggested us for 2d eco..after that we came to know that he is having HCM with COA …at 5 months of age he was operated for COA hoping that HCM will improve .but it didn’t help nd later at 1.7 years of age he had another surgery for SCAM…he is under medical supervision nd at present is gredient is 90 Nd doc are sugesting for another surgery..at present he is taking metarol 25 mg twice a day…we have been told that there is no medicine to cure HCM .Is there any further development which can cure HCM.
Their is no family history of HCM

Nov 14, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Thanks…the lady who massage my baby she said something is wrong..he had some problem in stomach get it check.
We said same to doc .. he checked him nd at the age of 4 months he was diagnosed with HCM.

Nov 14, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi I’m Neha from India…my 6year old son has HCM ..already had two surgeries…gredient StilL 90..doc suggesting another open heart surgery…