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Posts (24)

Aug 1, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I don't know what you take statins for, but there is a small print warning that they can cause atrophy in your leg muscles. Statins made my leg muscles so weak I could barley get around in a walker. I was taking it for a cholesterol level of 230 almost 2 years on the medicine at different doses the number didn't budge. My friend suggested a natural combo of Alfalfa tablets, ubiqinol & coconut oil & in one month my number dropped to 180. Two years later it's 160 & holding. I was off my walker within two weeks of stopping Statins. Now I have other causes for leg pain including bone cancer & radiation. They grew crocked when I was young so I'm use to pain. Makes me scream sometimes, keeps me up 99% of time, makes me want to get drunk & die at times. I'm a VERY light drinker~one six pack every 18 months, 4 bottles of wine a year…heavy stuff at Christmas. Anyway, I just found something that REALLY helps~ Rolfing. An old form of deep tissue message, specific exercises & physical therapy. Any exercise that light & easy like Sit n Be Fit on Public Broadcast TV, or Miranda Esmond- Whites' Classical Stretch is the BEST! Hydro therapy to cleanse the lymph glands is very important too. Walking moving be patient if it takes 4-5 times to do something-that's okay. Just persevere & be kind & gentle to your self & others. Oh,stretch your calf's out slow & gentle before you lay down & capsaicin ointment on the joints help.

Aug 1, 2018 · Chronic pain in all joints in Chronic Pain

I feel the same way. I had one session of Rolfing for the 1st time. It helped TREMENDOUSLY. I follow the exercise given & can walk 5 blks some days. Just squats and Sit n be Fit on TV helps a lot.

Dec 16, 2017 · Radiation therapy for vulvar cancer in Cancer

I’ve been in similar situations. You have the right to as much privacy as you wish within what they are able to give you. That starts with your husband not being present. It use to be men were not expected to be in delivery rooms, nor did they want to. Now it seems unnatural if that is the case. One BIG thing people tend to forget under the stress of hospitalization is we can sign papers stating we don’t want students involved-even if it is a teaching hospital. If for some reason they insist perhaps you can limit it to one or two students with limited participation. Ask questions as to the extent of involvement students & others may have & express your concerns. Your health & blood pressure & rate of healing should be their number one concern. Oh! Sorry, I just realized I’m posting a month late! I’ve been away in hospital. Hope all is well. Take care.

Dec 16, 2017 · Stem Cell Therapy for Arthritic Knees in Bones, Joints & Muscles

Thank-you for the information. Before I get my hopes up do you know if they will turn me away if I have bone cancer in the same knee?

Oct 28, 2017 · Osteoarthritis in Bones, Joints & Muscles

I use acetaminophen with my ibuprofen. I find flannel sacks of rice/lavender seeds…what ever you like, warmed 2 minutes in the microwave work wonders. For some reason they help me better than a heating pad or hot water bottle.

Oct 27, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Oh one doc said last year I have cancer in the soft tissues & synovial fluids & the like. I also just a few months ago found out the arthritis I have had for 20 + years is osteo. it’s because of this I can’t have surgery. I had 3 bone density tests in the past 2 years. All were high normal & there’s no answer as to how this could be with powdery bones that are about to break. Any suggestions would help. I have no funds to travel.

Oct 27, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hi, I’ve posted on a few other groups here. I’m still trying to find out all of what I have & how to treat it. When I was waiting 2 hours for my orthopedic oncologist a sweet nurse came in with a huge sarcoma note book explaining how to use the book for access to help. My ortho saw it & said nothing. After a 7 minute meeting he sent me for 30 minutes of more x-rays, then a 2 hour 40 minute wait for a 3 minute appointment where he said he couldn’t tell by x-ray if the bone caner (in 90% of my body) has improved since my radiation or gotten worse. He never answers my question’s except to tell me I’m not a candidate for surgery even though I have a few broken bones. The next doctor I saw ( within minutes) asked, “Why do you have that book? You don’t have sarcoma.” I can’t remember if it was my brain tumor doc or my endo onco doc. So I just sat the book aside when I got home a few days later. I still haven’t wholly accepted this, I guess.
Maybe I need a better team or better communication. Well it just dawned on me! I can just call Sarco even if I don’t “fit” they should be able to answer if I have it. Just reading some of these posts today I found out there’s different kinds of sarcoma! It started in my thyroid b4 2006. They just found it last year. It’s in my pancreas & I’ve never seen a doc for THAT part. The MRI, or is it a CT, lights up over 50% of my face/head & I haven’t seen anyone for that either. The radiation/iodine uptake causes all the cancer to show. It’s very poor quality- smudgy screen & print. Is this considered average care or below average…normal? Is it my lousy Medicaid insurance? The doctors? The extent of my Stage IV? The fact I’m 60? I’m in a very rural town without support groups. I’m due for my follow up radiation/iodine uptake soon to see the results of the oral dose. That’s all the treatment I had almost a year ago. Just posting today mad e my brain click to call the sarcoma office. Thanks for being here.

Oct 23, 2017 · Being Old With Chronic Pain plus Loneliness in Chronic Pain

@paracat~ I don’t know how to personal message, just thought all the doggie talk might not be best here. I’m on another website that lets you personal message. This site is much better because the other only covers one ailment. Believe me, I know all about the loss of income, identity, purpose, & future plans. It’s hard to find one place to get all the best answers, there isn’t one. Social workers suppose to help & patient advocates. They are good places to start. Write everything down. Start small, it might get overwhelming. I lived in a city that had an organization for people with ANY kind of disability. They were MOST helpful.

The best thing is to have a dog that is your Service Dog. That way all their expenses from food, grooming, Veterinary… is written off in your taxes or deducted from your rent if you have subsidized housing. I trained my first one by myself 15 years ago. That was sufficient than. I don’t know how the rules have changed. Some are different State to State. Back then all you needed was a doc to write a letter stating you needed one. He’s semi retired now, so I’m training a new one. I believe one change is you have to have a certificate from a school that offers a Good Conduct Certificate. They usually have them at Community Schools for about $15-$20. My teacher let me make payments.

Here’s a website that asks you to foster & they cover all the expenses: http://www.rpsm.org/ The program needs Foster homes to acclimate shelter dogs they then put into prisons to be trained & re-homed with some going as Service Dogs. Depending on your needs you might want to inquire on getting a service Dog there. You might have to live in their State, but you may be able to find a similar program near you. I found their site from this story: https://www.petcofoundation.org/love-story/jessica-dakota/

Another idea is to doggie sit a dog for someone who is away at work all day. If you are home most of the day. The hardest part for me is early morning & late at night when they need to go outside & my pain is at it’s worse. It might be a good way to start if you are getting use to any new weaknesses… to see how much you can do without a total commitment. I’m looking for a tiny one for a friend in a wheelchair & I will be backup caretaker to her pup if she needs to go in the hospital or something. I think it would be easier to have 2 little ones because my arm can only play tug a few seconds. Pups go on for 3 1/2 hours! I love it!! Best of luck. There’s a lot to think about & we can revisit this topic anytime. It’s my FAVORITE thing to discuss!