About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts ()

Oct 3, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I am concerned that you cannot link to the Wall St Journal article of September 19 entitled “A QUESTION FOR ANYONE GETTING AN MTRI” unless you are a subscriber. If you wish, I will contact the Journal and ask if they could send this to you. If so, what would your email address be? floridaellie

Oct 2, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

There has been much discussion about MRI diagnosis, so I would like to bring everyone’s attention to an article in the September 19th issue of the Wall Street Journal which was entitled, A QUESTION FOR ANYONE GETTING AN MRI. This article basically says, “Patients need to know if the doctor plans to use Contrast or Gadolinium, because it may leave harmful metal deposits; a new FDA warning …..Earlier this month an advisory committee to the U.S. Food and Drug Administration voted 13 to 1 in favor of adding a warning on labels that Gadolinium can be retained in some organs, including the brain, and even in patients with healthy kidneys.” When this article appeared, I called my physician and found that our hospital used Gadolinium and I refused treatment there. I am now in search of an MRI complex that only uses Contrast. Check the September 19th issue of the Wall Street Journal at your library, so you can read the rest of the the article covering the effects of Gadolinium on a 55-year-old woman from Cleveland and decide what you want to do Floridaellie

Sep 26, 2017 · Meningioma - I'm scared to watch and wait in Brain Tumor

Dear Eleanor,
It’s amazing that my name is the same as yours, and I am also a senior, age 86 (87 in January). My reactions on hearing my Meningioma was not curable at my age was somewhat unsettling…..I refused an MRI because this new growth was discovered by a CAT scan at a time when I felt only a bit dizzy. What the CAT scan reminded me of was a similar fearful event 15 years ago when I came down with Diverticulosis and had to be CAT scanned. The scan at that time seemed to identify lots of scary small stuff plus a lump on my kidney, and I was hustled off to see if was Cancerous. The cancer physician wanted me to have another scan within three months to see if it was growing. I was ready to agree, but just had gone thru radiation for a tooth removal, a toe crack, and breast exam. Frankly I thought that was a lot of radiation. So I sat down and wrote a letter to the doctor, telling him about all this radiation, and asked if it wouldn’t be better to simply wait a year. In addition, I told him about that CAT scan I had for my kidney 15 years ago (and was lucky enough to dig in my old health file and find a report). I enclosed a copy of the old scan report and asked if it could be compared with the current CAT scan……had my kidney lump shown any growth? And whether we could again discuss the whole business. We met and I was pleased to discover that the growth on my kidney had not changed at all. In addition the physician looked me in the eye and agreed that I had radiation enough and dismissed my case as closed. (I forgot to ever have it Cat Scanned again) and I went on with my life. That was fifty years ago.

This early episode in my life has stuck with me, and now at the age of 86 I feel that going thru additional CATscans or MRI procedures is a waste of time. Why burden my brain and body with further scanning when none of it can lead to a cure? I feel fortunate to have lived until the age of 86, and now am determined to go forward with whatever I have left in this life, keeping my mind on eating right, reducing stress, and light exercise with my eye on what good may lie ahead. I wish you and all the rest of us the power and the courage to live longer and better.