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Posts (2)

Jul 3, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Here are the sounds I have trouble pronouncing clearly: s, d, double t’s, th. I went through speech therapy and I improved over the first 6-9 months and I was fitting with a mouthpiece, similar to a kid wearing a retainer after braces. It is thicker which gives my tongue something to touch when I talk. That has helped as well. I don’t go therapy any more; I guess they believe it’s not a problem. People say it’s hardly noticeable but to me it’s pronounced. Speaking… speaking Spanish, more specifically, has been my life for as long as I can remember but now I can’t do that as effectively as I once did. That just kills me, figuratively speaking. I have never been the most social person either but now I sometimes I withdraw from social conversations for fear not being understood.

Jul 3, 2017 · Diagnosed with sarcoma? Let's share in Cancer

I was diagnosed with low-grade myofibroblastic sarcoma on my tongue in July 2015. Other than trying an occasional cigarette or chew in my younger days, I wouldn’t be considered a smoker of any degree. A considerable portion ( I don’t know the exact percentage but to me, it was/is considerable amount) of my tongue was removed on July 30, 2015. My wife, a dental hygienist, tells me quite often that I am a lucky guy. It was removed by surgery, no chemo, no radiation. She has made me aware of the “could have” scenarios. Spots were also found on my lungs and I had lung surgery in August, 2015. The spots were non-cancerous. In the meantime, I had started my new job of high school principal on August 1, 2015 after teaching Spanish for almost 20 years. I spent two years as principal and this fall I’m going back to teaching Spanish.

My followup visits with my surgeon and MRI’s have all been good. My physical state is fine. I still struggle with my speech. People tell me they can’t notice it but I can. They are too nice to say anything, in my opinion.

It’s been a rough two years. I struggle daily with my speech and how I sound versus what people tell me they hear. Not sure if this what this group is for but there it is. Thanks for giving me an opportunity to share my story.