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May 26, 2017 · Rifampin side effects in MAC & Bronchiectasis

Hi Linda. I hope you’re doing well with the meds. It’s been about two weeks taking my daily Rx cocktail and so far I feel pretty good. Fingers crossed for us both.

May 15, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

I just started yesterday with daily Rifampin, Azithromycin and Ethambutol meds and started peeing orange immediately and now, day 2, a low grade but persistent headache. Will have to see how things develop.

May 15, 2017 · Do Bronchiectasis and MAC go together? in MAC & Bronchiectasis

I’m glad to have this forum available for questions and support. My reluctance to do the antibiotic treatments was primarily because of some noted side effects, particularly potential hearing/vision loss. I’m a sign language interpreter and both senses are critical for me to be able to do my job. Five years ago I had sudden sensorineural hearing loss to a degree that affected my work, and I’m terrified to think of losing more. I already wear glasses and am concerned about that getting worse too. Needless to say, if I can’t work I can’t afford my incredibly expensive health insurance! My pulmonologist is aware of my history and considered that when prescribing meds, and I will follow up regularly with my audiologist and ophthalmologist. Has anyone on the forum had issues with these specific side effects?

May 15, 2017 · Do Bronchiectasis and MAC go together? in MAC & Bronchiectasis

Hi Becky, thanks for your encouraging words. I really do think that having a community of support from people who have lived through similar issues will be an enormous help. I went through the whole gamut with the cancer treatment (surgery, chemo, radiation and meds) but always had the hope and expectation of achieving remission, and life going back to a somewhat “normal” state. That treatment probably played a role in this condition though, as the area of cavitating lesions is exactly where I received the radiation. This chronic condition feels more oppressive, and I’m not sure if I can expect anything more than to just maintain my status and keep my symptoms from becoming progressively worse. If the MAC is successfully eradicated does the underlying bronchiectasis become less symptomatic? Would love to hear other perspectives on this.

May 14, 2017 · Rifampin side effects in MAC & Bronchiectasis

Hello. My name is Teresa and I’ve just joined this group. I was diagnosed with Bronchiectasis and MAC in September 2016 after a CT scan showed cavitating lesions and the sputum sample identified MAI/MAC. I’m seeing a Pulmonologist here in Orlando, Fl who has experience dealing with and treating patients with both conditions. The original plan was to try to control symptoms with nebulizer meds as I had so many concerns regarding the antibiotic regiment. A recent scan showed that the lesion is getting larger and my symptoms are getting worse, so I have started a course of Rifampin, Azithromycin and Ethambutol today. After just one Rifampin dose my urine is quite orange, which my doctor had given me a heads up about. I understand that this effect is harmless, but I’m wondering if it will also cause orange sweat, which would be quite an embarrassing problem to have here in the Florida heat. Has anyone else had experience with this side effect?

I’m in my 50’s and have dealt with a lot of medical issues over the years, including a breast cancer diagnosis 5 yrs ago, but to be honest this chronic condition and its treatment scares me more than anything else I’ve faced. I was glad to find this group and hope to make some connections and find/give support to others going through the same thing.

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May 14, 2017 · Do Bronchiectasis and MAC go together? in MAC & Bronchiectasis

Hello. My name is Teresa and I’ve just joined this group. I was diagnosed with Bronchiectasis and MAC in September 2016 after a CT scan showed cavitating lesions and the sputum sample identified MAI/MAC. I’m seeing a Pulmonologist here in Orlando, Fl who has experience dealing with and treating patients with both conditions. The original plan was to try to control symptoms with nebulizer meds as I had so many concerns regarding the antibiotic regiment. A recent scan showed that the lesion is getting larger and my symptoms are getting worse, so I have started a course of 3 daily AB’s today. I’m in my 50’s and have dealt with a lot of medical issues over the years, including a breast cancer diagnosis 5 yrs ago, but to be honest this chronic condition and its treatment scares me more than anything else I’ve faced. I was glad to find this group and hope to make some connections and find/give support to others going through the same thing.