Badges ()

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts ()

Jun 7, 2017 · Psoriatic Arthritis in Autoimmune Diseases

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

May 26, 2017 · 2017 NTM & Bronchiectasis Physician/Patient Conference in MAC & Bronchiectasis

I’m exhausted every day! Sometimes, I wake up, take a shower, then feel as if I can’t do another thing until I lay down again!

May 20, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

Thanks Kate! I’ve only been on my three drug regimen for close to two months now and it’s just been knocking me for a loop. I have the runs every day that I take the meds then the following day I’m too weak to do anything, I’m exhausted, and sometimes I can’t go out at all! I’m sooooo fatigued & just feel,as if I have no life! Yeah you’ve been on the antibiotics for a year, are you feeling any better, do you still get all those horrible side effects? Also, is your MAI still active. Hope you’re feeling good and again thank you for answering.

May 19, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

And I’m on M a I trust three Days a week. Besides the diarrohea and the 15th on those three days I sometimes run a low-grade fever… Has anyone else had The low grade fever problem?

May 19, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

Thank u so much for sharing that….Makes me feel so relieved!

May 18, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

I take MAI antibiotics 3 x week Mon, Wed & Thurs for 5 weeks & have diarrhea on all 3 days! Essentially I’m locked into my apt/bathroom those 3 days! Anyone else have this problem & if so, how long does it last?

May 15, 2017 · Flying with MAC/MAI in MAC & Bronchiectasis

Thanks so much for ur response. You sound like a very special person.