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Posts (17)

Jan 16, 2018 · Life after HCM Surgery in Hypertrophic Cardiomyopathy (HCM)

@jshah,

I was freaking out after diagnosis too, but after reading a lot of people’s experience over here and on 4hcm forum calmed down.
Usually people more prone to report about bad things, but both forums are flown by positive outcomes. In my case it triggered my decision to look for symptom relieve by surgical means, though in the COE clinic + by one of the Mayo’s star-surgeon. When they put me on table I was calm as boa… and now after 5 months passed don’t regret about the decision a bit. Somehow my confidence was convincing to family members, – so they didn’t have hard time. They checked me regularly after the op on my 1st wake up, and following days and in between visited local sights. I agree with nightlite8 about the nurses there – they are super professional and the same time very kind …
In other words, – everything is going to be OK. Even more than OK. Your husband will see the difference maybe not the next day but after a week for sure. Wish you well!

Oct 2, 2017 · Life after HCM Surgery in Hypertrophic Cardiomyopathy (HCM)

Positivity,
I told in rehab that I am using treadmill at home and measuring my BP too. Since my vitals during sessions were ok they agreed to graduate me earlier. Today I got certificate and T-shirt from them. Frankly at very beginning I didn’t see the point to go there, because I started using treadmill right away after my return from hospital. Of course it is different for everybody. Anyway wish you well recovery!

@zargul,
the bill for all tests preceding surgery, surgery and 5 day hospital stay with followed other tests, monitoring, rehab was just below 100 grands.
I was lucky to have insurance which took care about majority of the payment. Hope you’ll find the way to get the treatment. Wish you luck!

Sep 30, 2017 · Life after HCM Surgery in Hypertrophic Cardiomyopathy (HCM)

@positivity
first two weeks I slept in recliner. I started checking a side sleeping around 3d week (at the beginning very carefully). After 4th week I sleep on side or stomach without problem. I could drive just after discharge since didn’t have problems with upper body (shoulders), but didn’t do it until day 10 after surgery. My main pain was during laying down and getting up from horizontal position for 2 weeks (that’s why I used recliner). Once I was up I felt virtually as a healthy person, – no problem with walking whatever. I started rehab on week 3 and going to be graduated next Monday. So in total it took 4+ week, though the whole course they proposed is about 12 weeks.
It seems everything healed now, – I don’t have any pain or discomfort – everything in the body felt natural… But just in case I am going to be careful with weight lifting for another month or two and then check with my physician.

Sep 29, 2017 · Life after HCM Surgery in Hypertrophic Cardiomyopathy (HCM)

Hi positivity,
glad you feel better after myectomy. I am 7 weeks today after mine. Also was consulted with Dr.Ommen and the surgery done by Dr. Schaff. My recovery was smooth, – so far so good and don’t have the symptoms that forced me to look for better option than not working in my case medication (keep my fingers crossed). Hopefully it lasts…

Aug 25, 2017 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Finally I myself 2 weeks after extended septal myectomy performed by Dr. Schaff. If interested please read for details at Lisa Salberg’s forum:

https://messageboard.4hcm.org/forum/hcm-support-forums/septal-reduction-myectomy-alcohol-septal-ablation-other/224950-extended-septal-myectomy-at-mayo

May 2, 2017 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

@cynaburst, @wintergirl8,
thank you for your stories, – really really appreciate it. I haven’t had such long experience with symptoms. HOCM turned on suddenly last year, and forced making life adjustment. Without the boards like that I would just thinking that it was aging… It’s good to know that there is chance to “extend lease” for a while.

May 1, 2017 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

@wintergirl8, – how sever were your symptoms before SM? How long did it take after Dx to SM? I was diagnosed more than year ago, and felt deterioration of my conditions since then.

May 1, 2017 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Thank you all. So a bottom line is transportation….