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Jul 22, 2017 · Update On Treatment of MAC in MAC & Bronchiectasis

He is also my doc. He is a fine doctor and has a calming demeanor. He will answer all your questions so don’t be afraid to come with your list! Rosie

May 7, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Katherine, my heart aches for you. I am praying that you regain your energy and find answers next week. Six hours of energy is moving in the right direction right? You’ll be at 12 before you know it. I will be at the Mayo on May 12th. Hoping for some answers myself. Lots of positive energy heading your way. Rosie

Mar 4, 2017 · Probiotics & Antibiotics in MAC & Bronchiectasis

Hello All, I hope you had a good Saturday. I had to start a round of Doxcy today for 10 days for the most recent lung flareup. Some of you may know by my previous posts, that I also struggle with SIBO (small intestine bacterial overgrowth). Needless to say, I am a bit worried that this round of antibiotics will contribute to my SIBO and heaven forbid the dreaded C DIF. I have started to take 15 Billion probiotic daily (ultimate Flora) and wondering what strength those of you take when you are on a course of antibiotics.
Kate, I believe you shared info on Florstar. Does this probiotic contain dairy? I am lactose intolerant and I could not tell by the advertisement.
I look forward to learning about the strength and amounts you take.
Rosie

Mar 2, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you, Thank you Katherine. I am so glad I found this site and you! Did not know about the expand a lung breathing fitness exerciser. Another apparatus to buy. I am all for increasing lung health through minimal medication when possible.

Mar 2, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you Katherine. Watched the video informative and educational. Dr. Leventhal also suggested either the acapella or the aerobika. I was reading the contraindications and saw sinitus on the list. Hmmm, wonder if it will cause me issues. Another question for Dr. Leventhal. I am sure he is getting frustrated by now of my asking his staff to answer questions. LOL

Mar 2, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you for Katherine. Dr. Leventhal approved my using the Aerobika so I will purchase and cross my fingers it will prove useful. Rosie

Feb 28, 2017 · Small Intestine Bacteria Overgrowth in Digestive Health

How is your wife doing? Are you familiar with the fast tract diet? Dr. Norman Robillard, digestive institute. I have been diagnosed with SIBO, have motility gastro issues and also bronchiectasis and NTM. The last round of antibiotics given to me during a hospital stay along with previous antibiotics for my lung infections caused the SIBO and a fructose intolerance I am convinced since I did not have this issue before these antibiotic issues. I also have lost so weight I hate to look at myself in the mirror and afraid to weigh myself. Mayo Clinic conducted a whole bunch of tests, almost all that are available to tell me I don’t have acid reflux although my Pulmonary doctor does not agree with them. I have found some relieve and have gained 1.5 lbs (which I will take because at least I am not losing it anymore) since I started the fast tract diet. Has your wife been checked for H Pylori? I have had this stomach infection twice and some of the symptoms are very similar to SIBO including the nausea. Best of luck and check out Dr. Norman Robillard’s work.