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Posts (169)

Sun, Mar 3 8:30am · Are Nebulized saline and Aerobika beneficial? in MAC & Bronchiectasis

@elainet Good for you! I am not good about using my nebulizer daily since it seems to bring up nothing unless I am sick (that's usually when I use it). I've been MAC free for two years and also have bronchiectasis. I have had pneumonia twice and a few bouts of bronchitis caught from the germy grandchildren. Will be going in for a bronchoscopy soon since my latest CT scan showed some consolidation. Crossing fingers it is negative! Also, I am going to try to use my nebulizer daily even if it doesn't seem to do anything.

Aug 21, 2018 · Possibility of resolution of mild bronchiectasis in MAC & Bronchiectasis

I found this most interesting!

“Earlier diagnosis of even mild disease will also change the outcomes, including the possibility of complete resolution. The definition of bronchiectasis may also need revision as the disease may not be permanent in all cases. With these changes, research needs to be encouraged and this frustrating disease should not be orphan any more.”


Apr 23, 2018 · Symptoms? in MAC & Bronchiectasis

@lauriefrancis Oh, that's rough! So sorry your mom is going through this. What do the doctors say? The wheezing and shortness of breath could be caused by the MAC or bronchiectasis. How do her lungs look in the CT scan? I've not heard of headaches or the other issues with MAC but maybe someone else will chime in here. @windwalker can you help?

Apr 22, 2018 · Symptoms? in MAC & Bronchiectasis

@lauriefrancis Hi and welcome! What sort of symptoms?


Hi @suzie2017 That usually means MAC, at least it did in my sputum culture. They should now send it to National Jewish or some other such center for susceptibility testing. Meaning which antibiotics will/won't work to treat it. Best to you and your husband.

Apr 19, 2018 · Bronchiectasis with MAI (for the second time) in MAC & Bronchiectasis

@windwalker Hi Terri, it's haemophilus-influenzae. It's not really flu but called that for some reason. It's contagious and can infect children (although there's a vaccine now) or adults who have a chronic lung disorder. I'm not sure if it's bacterial or viral. I know it can cause bacterial pneumonia (which I did not get luckily) among other problems. I seem to be recovering from it with only a cough and fatigue left. Annoying how long it takes though!

Apr 17, 2018 · Bronchiectasis with MAI (for the second time) in MAC & Bronchiectasis

@windwalker Thanks, Terri. I am grateful and feel very lucky. I'm fighting an exacerbation currently from a virus I picked up that turned into HIB but the antibiotic killed the bacteria so now just in recovery mode. I guess I didn't realize that MAI was tougher to treat. Anyway, the meds were worth it for me and I'm glad I didn't have weigh serious side effects against treatment.

Apr 16, 2018 · Nursing Occupational theory in MAC & Bronchiectasis

@irene5 Great response. When I first learned I had MAC I was angry and looking for something to blame. I couldn't accept that I may never know what caused it. I blamed my workplace and the moldy building I worked in. After a time, I did come to the point of acceptance that it really did not matter what caused it. And this statement: " but for now the research doesn’t support that". The research. Always read the research. That's the only reliable source of information.