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2 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@lindam272 Hi Linda, a suggestion to post this as a separate topic? I almost missed it but decided to check in on this thread. I imagine most people won't be doing that. Thanks! Jen

2 days ago · 2018 NTM & Bronchiectasis Physician/Patient Conference in MAC & Bronchiectasis

@heathert I wish you could also. Would love to meet you. I'll take notes!

2 days ago · 2018 NTM & Bronchiectasis Physician/Patient Conference

Is anyone planning on going? I am registered and plan on attending. Date is May 17. https://www.ntminfo.org/top-news/articles/current-news/item/723-2018-conference

Fri, Jan 26 8:13pm · Have to start the big three in MAC & Bronchiectasis

Hi @jkiemen when I was on meds my biggest concern was compliancy,. So whatever it took for me to take my meds daily is what I did, even if it wasn’t exact protocol.

Fri, Jan 26 8:11pm · Have to start the big three in MAC & Bronchiectasis

Truth. I tell people I am now back to normal although I am not really sure what that is since I wasn’t even normal before diagnosis apparently.

Fri, Jan 26 7:09am · Have to start the big three in MAC & Bronchiectasis

@rosecurran Hi Rose. I took all mine together after lunch but I didn’t have a problem with getting sick. I’d get a few stomach cramps sometimes and they made me sleepy but that’s about it. Sorry I couldn’t be of more help. I’m sure others will chime in. I’m glad they caught the infection before more damage was done to her lungs. I also have mild bronchiectasis but also some cavitary lesions (which are holes in the lungs). I don’t feel any effects from them though, now that the infection is cleared up. Like bronchiectasis, the holes never go away I guess, but as long as they stay the same and I feel fine, it’s nothing to worry about.

I do think that she is supposed to take all of each med at once. Like if she takes 4 ethambutol tablets she should take them all at once.

And good for her for staying active! It is very important to keep the lungs healthy.

Wed, Jan 17 11:12am · Questions about treatment, alcohol and doctors in Phoenix in MAC & Bronchiectasis

@windwalker In fact, her mother-in-law is going to move there also and she LOVES taking care of the grandkids. The whole thing. I enjoy doing things with them but I raised two kids already and have no desire to do any of that caretaking stuff again except for short stints.

Wed, Jan 17 11:14am · Questions about treatment, alcohol and doctors in Phoenix in MAC & Bronchiectasis

@ling123 My sister-in-law has that situation. She has no children of her own but has a niece and nephew who she is very close to and her niece has children who are like her grandchildren.