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Posts (188)

Tue, Feb 11 3:22pm · 7% Saline Solution in MAC & Bronchiectasis

Sounds like you have a great Dr who will even consider alternative options.
I would be interested if you know more about the biocidin or the phage therapy. Phage is not covered by insurance right?
I believe when antibiotic resistant infections like this develop the answer isn't just throwing more antibiotics at them. In the world of antibiotics they just don't seem to be able to come up with new ones. But a better plan is to make the antibiotic resistant bacteria such as mac more susceptible to the antibiotcs we already have.

Thu, Jan 23 3:55pm · Have you had your water tested? in MAC & Bronchiectasis

That's great Teri I will be interested in the results. Good job in getting the word out, I guess more of us need to ask our water companies "in a nice way.,

Tue, Jan 21 9:33am · Dentist in MAC & Bronchiectasis

The last time I went to the dentist I asked the hygienist not to use the ultrasonic scaler because of the mist in my face the whole time. I don't know if it's a issue but I figure I'd rather be safe then sorry.

Sun, Jan 5 9:25am · Percussion Vests in MAC & Bronchiectasis

Did you apply you own Velcro straps or did you get yours that way? I find my fasteners hard to manage to with having RA.

Dec 18, 2019 · MAC Reboot - After 3 Years Post Meds in MAC & Bronchiectasis

Thanks Sue was going to answer this message but it got lost while writing.
But you covered everything I was going to say.
I do have a Hill Rom vest also but it's very hard for me to stay compliant but if I'm having great difficulty breathing I do.

Dec 17, 2019 · MAC Reboot - After 3 Years Post Meds in MAC & Bronchiectasis

Welcome Mim
Yes if you have brochectasis you will be susceptible to these organisms and others. Do you nebulize saline and do airway clearance? Trying to keep the airway clear and clear is essential.
I have had mycobacteria abcessus show up and disappear several different times over the last 4 years and I was never treated with the antibiotics. I guess abcessus is the more difficult one to treat too.
So this disease can go away on its own too.
Also as Carolyn said our mentor Teri uses rotating antibiotics a different one each month for 7 days which is working for her.
Take care.

Dec 6, 2019 · Turbocharging the body's healing efforts in MAC & Bronchiectasis

Sure my Italian salad is made with Good Seasons packets of Italian dressing and mix with good Olive Oil and Apple Cider Vinegar with the mother. Use romaine and leaf lettuce tomatoes, black olives, cucumber, pepperocini and put the sauerkraut on top. Since the salad is already tangy the kraut blends in well. I saw someone on a video on beating cancer who ate two huge salsads like this every day with kraut and everything else in the salad.
I'm pretty much have gone vegetarian except for fish and eggs now so I eat lots of salads.

Dec 5, 2019 · Turbocharging the body's healing efforts in MAC & Bronchiectasis

That's some great information!
I so agree we need to try and be proactive with our food selections
I do buy the large fermented saurkrauts from Costco in the cooler section. I found out it's really good thrown in with my Italian salads.