About

First Name
Shari

City
Burnsville

State/Province
MN

Country of Residence
US

Postal/Zip Code
55337

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Posts (185)

Sun, Jan 5 9:25am · Percussion Vests in MAC & Bronchiectasis

@gj53
Hi
Did you apply you own Velcro straps or did you get yours that way? I find my fasteners hard to manage to with having RA.
Thanks
Shari

Dec 18, 2019 · MAC Reboot - After 3 Years Post Meds in MAC & Bronchiectasis

@mimdavidson
@sueinmn
Thanks Sue was going to answer this message but it got lost while writing.
But you covered everything I was going to say.
I do have a Hill Rom vest also but it's very hard for me to stay compliant but if I'm having great difficulty breathing I do.
Shari

Dec 17, 2019 · MAC Reboot - After 3 Years Post Meds in MAC & Bronchiectasis

@mimdavidson
Welcome Mim
Yes if you have brochectasis you will be susceptible to these organisms and others. Do you nebulize saline and do airway clearance? Trying to keep the airway clear and clear is essential.
I have had mycobacteria abcessus show up and disappear several different times over the last 4 years and I was never treated with the antibiotics. I guess abcessus is the more difficult one to treat too.
So this disease can go away on its own too.
Also as Carolyn said our mentor Teri uses rotating antibiotics a different one each month for 7 days which is working for her.
Take care.
Shari

Dec 6, 2019 · Turbocharging the body's healing efforts in MAC & Bronchiectasis

@thumperguy
Sure my Italian salad is made with Good Seasons packets of Italian dressing and mix with good Olive Oil and Apple Cider Vinegar with the mother. Use romaine and leaf lettuce tomatoes, black olives, cucumber, pepperocini and put the sauerkraut on top. Since the salad is already tangy the kraut blends in well. I saw someone on a video on beating cancer who ate two huge salsads like this every day with kraut and everything else in the salad.
I'm pretty much have gone vegetarian except for fish and eggs now so I eat lots of salads.
Shari

Dec 5, 2019 · Turbocharging the body's healing efforts in MAC & Bronchiectasis

@thumperguy
That's some great information!
I so agree we need to try and be proactive with our food selections
I do buy the large fermented saurkrauts from Costco in the cooler section. I found out it's really good thrown in with my Italian salads.
Shari

Dec 3, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@fdixon63
Hi I may have wrote in error that I take 5000 mg D 3 sorry that should be 5000 IU D 3.
I do get my levels checked often when I see my primary and that amount brings my levels up to a normal. I do believe that vitamin D is very important to the immune function. If you live in a sunny climate you may not have a problem but it's easy to get checked to make sure your not deficient.
I do know people that are put on prescription D 3 Supplemention here in Minnesota where we don't get out in the sunshine a good share of the year.
Shari

Nov 29, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@kathyhg
@fdixon63
I take 5000 mg of D3 daily
You can and should have your blood levels checked yearly by your Doctor. Most people are low but if you take it you get too much in your system it can be toxic.
People like myself that live in north in the winter months can be deficient because you get a good dose when you can get out in the sunshine.
Shari

Oct 29, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@american
Rita that's great news I'm so glad your feeling better!
Shari