About

First Name
Shari

City
Burnsville

State/Province
MN

Country of Residence
United States of America

Postal/Zip Code
55337

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Posts (178)

Tue, Oct 29 9:15pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@american
Rita that's great news I'm so glad your feeling better!
Shari

Wed, Oct 16 9:25am · Medical Cannabis for MAC in MAC & Bronchiectasis

@suenfl
Interesting!
Was it your pulmonologist that prescribed the canabis? Is it safe and all for your lungs. Just alot going on in the news about vaping now. Glad it is helping you, do keep us posted!
Shari

Tue, Oct 1 10:54pm · Best Shower heads for MAC in MAC & Bronchiectasis

@stevesunshine20
I also own your Shower Clear shower head. I love the flip open and dry concept. It made perfect sense to me that an open and dry shower head would be cleaner than one that's damp and dark and possibly growing biofilms.
Thanks for your product
Shari

Tue, Sep 17 9:24pm · New sputum results. Have to make a decision. in MAC & Bronchiectasis

@fdixon63
I think it may depend on how sick you are. I have had a pic line one time with a second antibiotic when I was extremely sick. But as of lately I just do 28 days of toby. Does the sensitivity test say it's sensitive to tobramyacin?
Hopefully just the toby would knock it back enough for your own immune system to take hold.
Good luck!
Shari

Fri, Aug 30 6:45pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@windwalker
Yeah for negative results!!

Fri, Aug 30 10:41am · Supplements and the Big 3 in MAC & Bronchiectasis

@jkiemen
JoAnn
I take suppliments also I think in a perfect world we would get our vitamins in our food but the ground is depleted from nutrients. Also many people just don't eat healthy nutrient dense foods like we should.
Everyone should get their vitamin D level checked by their primary Dr.
Mine was extremely low now I suppliment 5000 units a day and its up to where it should be. I live in Minnesota so our sun exposure is limited too. Vitamin D is extremely important to your immune system.
I take C, zinc, magnesium aswagandha and NAC.
What type of glutithion do you use? I have heard of nebulizing glutithion also going to check with my Pulmonologist regarding that when I see him next.
Unfortunately in our healthcare Doctors get very little teaching on diet and suppliments.
Shari

Fri, Aug 9 9:30am · Helpful Devices for MAC in MAC & Bronchiectasis

@cila
Yes Cila
Your doctor submits the scrip to your insurance.
I kinda wished I looked more into the afflo vest instead because I don't like being tied down to the Hill Rom. But then I always do my salt nib and Ventolin nib at the same time so I'm tied down anyway.
Shari

Thu, Aug 8 6:48pm · Helpful Devices for MAC in MAC & Bronchiectasis

@flib
I too have the vest. Mine is the Hill Rom vest and Medicare paid for most off it. But still just the copay was 3000.00. I think it helps. I'm suppose to use it two 30 minutes sessions a day but I don't usually do that unless I'm very congested. But then it also helps if you have a husband or someone to do pounding on your back to loosen the phlegm as an alternate to the Vest.
Shari