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Wed, Jan 2 3:03pm · Colloidal Silver in MAC & Bronchiectasis

Hi @kristiemlove
I do use coliadial silver only by mouth though.
I think there is one person on the board that was inhaling it. Hopfully she can chime in.
I do think the silver is effective against Mac but I was always afraid of the unknown of it possibly accumulating silver ions in the lungs. Hopfully taking orally is effective enough.
I was diagnosed three years ago and testing positive for over a year. But am now testing negative for one 1 1/2 years. I am using saline the vest and many herbal products I learned about in the book "Herbal Antibiotics" by Stephen Buhner. I have not used antibiotics for Mac. I was diagnosed with the bad strain Mycobacteria Abcessus. I believe there are nature alternatives.
Hope this helps!
Shari

Dec 13, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

The pseudomonas I had tested that it was susceptible to all the antibiotics surprisingly. But because of all the plugging didn't relive the congestion. I used ceftin and then Toby. When he did the scope he tested for 12 different things and they have all comeback negative.
We will rotate with ceftin augmenting and doxy. I can't use cipro and sulfa because allergy to sulfa and reaction to cipro.
Fingers crossed.
Take care
Shari

Dec 12, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker888
Hi Terri
I still quietly follow along on the board.
As a matter of fact I saw my doctor today.
We discussed doing the rotation antibiotics like you do and he agreed. He wanted to do that many years ago but now I am in agreement that it would be the best coarse of action.
No mycobacteria has shows up in a year and a half now.
However I just got over a bad case of pseudomonas.
I got so congested that he did another broncoscope with the wash. He said every branch was all clogged up . It took him twice as long as he usually takes for a scope.
I still use the coliadal silver but only like a teaspoon or two a day.
I started taking the clear lungs and I must say that that does help once I upped my dosage. Saw on the bottle you can take a couple every four hours at first and when I upped my dosage it really worked. It says once you feel relief to go to down a maintenance.
I also am using the herbs which I feel have kept the mycobacteria away. Now we will be treating the bronchectsis with the rotating antibiotics.
I am so glad that it sounds like your doing well.
Thanks for all you do for this board in education us.
Shari

Sep 21, 2018 · OPTIMA Study New Clinical Trial in MAC & Bronchiectasis

@jkiemen
Thanks for looking into this study!
Looking into ways of using ones immune response to deal with this infection is definitely a move in the right direction. Many cancer therapies are finally moving more and more into this direction also of immune targeted therapies.

Please keep us updated as you hear more!
Shari

Sep 10, 2018 · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@sueinoregon
Hello Sue and wellcome to this board my name is Shari.
I am so sorry for the health trials you have been going through. I know how really hard it is to deal with receiving news like that.
I believe it helps a lot to talk with others that are going through the same things or have been through some of the same trials. Also on this board you will learn so much about this disease, treatments and about how we can also be overcomers.
There are others on here on the board with RA I am one of them. I also had to go on SS disability for the RA a number of years ago. I was also on a biological immune suppressant drug 7 years ago but that wasn't when I was diagnosed with MAC but was diagnosed with Pseudomonas which had gone on for months before I got in to see a pulminologist.
The pulmonologist then took me off the immunological suppressing drug for RA immediately. I have been doing very well for 7 years with the RA while being on two different drugs to treat it that don't suppress my immune system. One is minocycline three times a week the other is plaquenil.
I also have been testing negative for Mycobacterium Abcessus for a year and a half now. I had tested positive for one year prior and did not do the antibiotics but a number of alternative treatments.
There is hope you can get through this. You need to get the best Doctors working for you. Some others here didn't take antibiotics some rotate one antibiotic for one week every month and some have or are taking the antibiotics.
Also there are some treatments coming on the scene that are easier like nebulized antibiotics or inhaled nitric oxide to name a couple.
Hang in there we are here for you!
Shari

Sep 7, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker888
Hi Terri.. I was reading this link and wondering about the saline treatments and if I'm doing them wrong.
I do them by continuously holding the mouthpiece in my mouth inhaling and exhaling, this is the same way I do my asthma medication or antibiotic medications in the nebulizer.
When I have been in the hospital and using a medication by nebulizer the respiratory therapist never said do it otherwise.
Also I use the 7% saline from the pharmacy and it only takes 10-15 minutes for me. Just wanted to make sure I'm doing it right or not.
Thanks!!
Shari

Aug 10, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@boomerexpert
Your so right about checking your lungs before and while on humira.
I was put on Humira 8 years ago with devasting results to my lungs. It was the beginning of all my trouble with infections. The first one Of Pseudomonas just about killed me before they figured out it was the humira. Then I got bronchectasis as a result and it was pretty much all down hill from there.
Shari

Aug 10, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker
Yes I have discussed the herbs I am taking with my pulmonologist.
He was "ok" with them. I'm pretty sure he thinks after a year and half of negative mycobacteria abcessus results that they are possibly the reason. But at the time I told him I'm not ready for the big gun antibiotics yet and wanted to try these herbs.
But every case is different and you should check with your Dr.
According to the my book "Herbal Antibiotcs" and web searches there hasn't been any negative side effects to the two I use by anyone yet.
But that doesn't mean that there can't ever be negative side effect. Also if your using any herbs I would recommend to make sure you use a supplier you can thoroughly trust. My herbs have been checked by a third party lab to make sure what is on the lable is exactly in the bottle.
If You have used antibiotics and they failed to work on your MAC it seems reasonable to give these a try to me.
Take care everyone!
Shari