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Dec 7, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@anniepie I had tinnitus off and on from back in the early 1990's. It was never too loud and would go away often for long periods of time. My tinnitus became pretty severe this past summer and it is either from the azithromycin or tobramycin – it began when I was finishing up the Tobi and starting on the azithromycin, so I'm not sure which one got it going but now it's loud and almost constant. I have learned to ignore it a good deal of the time, but sometimes it's just not possible. Just another new "normal." I have seen a commercial on TV about a group that can help people with this and read an article about it. If you Google, you can probably find some information but my ENT told me it is what it is. Linda

Sep 7, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@pfists – Hi, Shari! I have bronchiectasis, MAC and cystic fibrosis. I do breathing treatments at least twice a day – more if I'm sick and need additional clearance of my airways. It takes me about 10 – 15 mins also for the saline portion of my treatment, breathing slowly in and out with the mouthpiece in my mouth. The link that was provided by @alleycatkate yesterday has a link for a 3 min video that is a good resource to watch. It sounds like you are doing it properly. Linda

Jun 27, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi, @boomerexpert – Are you using CBD oil for your MAC or RA? If MAC, how does that help? I have wondered about it and haven't heard anyone using it for issues like ours until now. Thanks! Linda M

Jun 20, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@boomerexpert – I might give that a shot. I've been taking omeprazole daily for heart burn and would love an alternative. Linda

Jun 20, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert Hi, Heather, Thanks for that article. I've signed up for the newsletter and also sent that link to my CF doctor asking if taking the amino acids in supplement form would have any benefit with the tobramycin. Still waiting to hear from my insurance on whether I can get coverage for the treatment. I will let you know what I hear back. Linda

Jun 14, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Praying for squeaky clean results! No cooties!! Linda

Jun 14, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Hi, Terri, Yes, first time on it. I think my initial reaction was that I felt that my body betrayed me. After doing everything I can possibly do, I still have stuff growing that doesn't belong there. So frustrating! Hopefully, I don't have any bad side effects from the meds and can knock it out quickly. Thanks so much for the encouraging words! Linda

Jun 14, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you, @auntnanny. I am waiting to hear what the doc finds out from my insurance as to what is covered. I'll probably be on tobrymicin and perhaps an oral antibiotic. Glad to hear you had good results. Prayers for good results this time too! Linda