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2 days ago · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

Hello Toni. It sounds like your dr is somewhat lack-a-daisical. Perhaps he is not current with methods on treating mac. If you are interested in going to Mayo Clinic in Florida, it is a 9 1/2 hr drive for you. I have a neighbor with an AirB&B room in a covid free house if you need a stop-over.

3 days ago · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

Do you have much in the way of decaying leaves near your property? Woods, etc. Also ask your dr about adding glatimer acetate 'Copaxone' to the tobi. It is a booster that helps in some cases.

3 days ago · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

Jan, 85% oxygen! How long does that level persist! Is that at your resting rate? (while seated) Anything under 88% means you should have supplimental oxygen. Please monitor that, and report to your dr.

3 days ago · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

I love the way you put your Canadian flag at the end of your post.

3 days ago · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

It sounds like you are covering all of your bases. Hmmmm.

3 days ago · Should 4+ Pseudomonas be treated? in MAC & Bronchiectasis

Jan, you may be right that age prevents faster recovery times. I know that to be the case when trying to heal a broken bone. Perhaps do ask your dr about Colistin as Jennifer suggested. Please keep me posted.

5 days ago · Vibra lung in MAC & Bronchiectasis

How about using a gadget called an Aerobika? Some of us on here use that with success. I was prescribed one, but have yet to order it. https://www.aerobika-therapy.com/

5 days ago · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

Hello Kay. Yes! You should have a nebulizer and get a prescription for 7% sodium chloride. Most drs say to do a nebulized treatment twice a day. It keeps your lungs clear of phlegm, which we know is a breeding ground for mac and other organisms. It also helps to limit mac growth and lesson the awful symptoms of mac infection. A phone call to your dr's office to ask for a prescription should suffice. If you have trouble getting your dr to prescribe it, be sure to ask 'Why?". There is a print-out of a study by NIH that proves that 7% saline is very helpful in managing this disease. In some cases, the 7% saline has shown to eliminate mac. In all of my years on this site, I have seen how many of us on here have improved substantially by using the 7% saline. Will you please get back to me and let me know what your dr says about it?