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Dec 31, 2019 · travel nebulizer in MAC & Bronchiectasis

@tinaesims Hi. I am disappointed with my travel Pari Sport S. The plug that goes into the cigarette lighter died after one single use and Pari would not replace it. I bought one online through Amazon for $10.00. Pari wanted $30.00 to replace it. The Pari nebulizer just fizzled on me. It still runs, but I'd be sitting here for hours waiting for a vial to nebulize. Thankfully, my friend in Va (I am away from home right now) had a spare nebulizer she wasn't using. So, I borrowed it. The travel Nebulizer will get you through some trips though.

1 day ago · MAC Reboot - After 3 Years Post Meds in MAC & Bronchiectasis

@bluesplashgirl I am sorry to hear that you are feeling achey and tired. Many on our site have experienced the same thing with the meds. I never did 'the big 3' because I was a sissy back then. I am on maintenance antibiotics for life because I have bronchiectasis and because of that, I will always be vunerable to infections. Fortunately, I have had no side effects. (I have been on them since 2013) At my very first dr visit, I was told that he would start me on cipro and doxycycline on alternating months for 10 days each. He did the switching of the two to prevent resistance. He also said that these meds were lower tier (as in strength) and that if my mac ever became resistant , then I could be bumped up to a stronger drug. He said for me to never let a dr put me on azithromycin, for fear of mac becoming resistant to it. He wanted to save that as the last resort of big guns just in case I caught a resistant strain of mac some day. My regimen has worked so far. I have been mac-free since 2014.

1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sueinmn I try to clean my showerhead every six months. (BTW, I am having my water tested this month.) I buy the industrial cleaning strength vinegar at Lowe's hardware store.

1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sueinmn I try to do mine every six months. I am having my water tested this month.

1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@tinaesims What you are doing now sounds sufficient to me. You have the added benefit that your shower head opens to dry. I feel like you are in good shape on the course you are on.

1 day ago · 7% Saline Solution in MAC & Bronchiectasis

@kathyhg Hi Kathy. I started on the 7% saline back in 2013. At first it irritated my throat and lungs and caused me to cough (which is the goal). I'd say that after being on it 6 months; I got used to it. To this day, it does not irritate my senses. I am so used to it, in fact, that it barely makes me cough. I know that it is still good for me to use it as it does thin the mucous and makes my lungs inhospitable to bacterias. Perhaps keep plugging away at smaller quantities and built up your tolerance for it.

1 day ago · Dentist in MAC & Bronchiectasis

@crepass, Hello. Like Irene said, I had never heard of a dentist putting off dental work over mac. But then again; dentists, like drs are sometimes in uncharted waters when it comes to mac. You may want to ask 'why' he doesn't want to do the work. Are you on antibiotics at the present?

3 days ago · 7% Saline Solution in MAC & Bronchiectasis

@thumperguy 7% saline is the strength necessary to irradicate avium mycobacterium (mac).