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1 day ago · Big 3 and weight loss in MAC & Bronchiectasis

@erawl Hi there. Please read through past posts on what others have done to combat weight loss. There are all kinds of ways to bump up calorie intake. My weight cameback on after I tested negative for all lung infection. Pseudomonas was the culprit of my weight loss. This is a common bug that we, with mac and bronchiectasis contract. Be sure to get regular sputem tests for that too.

1 day ago · Looking for doctorrecommendations in southern Indiana in MAC & Bronchiectasis

@deborahwolf Hi. Go to http://www.ntminfo.org. they have a mac specialist registry by state. Good luck!

1 day ago · Good MAC Doctor Recommendations in MAC & Bronchiectasis

@jengelage Hello. I have a notebook at home with drs names in Tampa. I am out of town at the moment until next week. Try http://www.ntminfo.org to see a list of bonafide mac specialists. They are listed by state, then by area. Please get back to me if you still need help finding a dr.

1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@yaggie01 Hi there, and welcome to our group. I was happy to see that you have read many of our posts and are gathering your information. It is the smartest thing you can do. You will find that YOU will be your own best advocate. Are you able to navigate our site alright? Do you know about using the Discussion Board to find topics? Or entering key words in the 'search' box at the very top of this thread? I am here to help. I am glad that you are going on the Arikayce. Meds delivered straight to lungs are supposed to be better for your body. I didn't really get well after 10 yrs of being extremely sick; until I was put on inhaled tobramycin. That was my magic bullet. (Btw, I never got on the Big 3). Will you please stay connected with us and report back how you do on the Arikayce? Thnx!

1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sueinmn Hello Sue. As the mac gets beaten down; your weight should come back along with your appetite. Have you discussed the weight loss with your dr?

1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sueinmn Also, have routine sputem tests for pseudomonas. That infection is what took my weight down fast. That does not take long to grow and you can get an answer fairly quickly. When was your last sputem test?

3 days ago · Rifampin giving my mom mouth sores in MAC & Bronchiectasis

@oglewise Hello. Yes, rifampin is a known trouble-maker. It is the hardest one to tolerate. The main complaints I have heard about it is that it caused stomach cramps and nausea. Some people figure out a schedule for taking it that minimizes the side effects. i.e. taking it in the morning on an empty stomach, or taking it with crackers, or taking it before bedtime and sleeping through any side-effects. Some people have said that the side-effects wear off after a week or two. If it gets too bad for you, you can talk to your dr about an alternate medication. Will you check back with me and let me know how you are doing?