@sayaboleh Awe…I am sorry to hear that you are having such a run of bummers.
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@angiejohnson, Like I said, just because they are not listed on that site; doesn't mean they aren't around. They probably are not aware that a site like that exists. If you find a good, mac knowledgeable doctor in Milwaukee, perhaps you can suggest that they register themselves on NTMinfo. Best of luck!
@jkiemen Jo Ann, I have been reading over some of your past posts and came across this one. You stated that your dr said if he/she could not control your mac that he would refer you to NJH. I would also recommend Mayo Clinic. Do you think that time has come?
@sayaboleh Thank you so much for that recap Mary. Gee, it doesn't sound like they are making much headway with MAC. I appreciate that you took the time and expense to attend that conference. I plan on going to one in the near future. I would LOVE to go to the conference in Vienna!!!!
@jkiemen Hi Jo Ann. That has to feel very disheartening to test positive after 17 months on those meds. Wish I could hug you right now. Could your dr tell if it was a low colony count? Was there any improvement? Did your dr discuss other treatment options?
@angiejohnson Hi there. This dr is registered on the NTMinfo site as a knowledgeable specialist in the field of Mac treatment. He is the only one listed for your state on that site, but that does not mean that he is the only one around. His office is an hour and 45 mins from you. You may want to look up drs near you online and read their bios. Sometimes, they will list what their area of expertise is. Try looking up local Infectious Disease drs and ask them if they can recommend a pulmonologist who is also good to work with, My experience in the past has been that not all pulmonologists are familiar with treating mac, so be sure to see an I.D. dr as well. Let me know what you out please. Anthony Zeimet, DO – Infectious Disease
Affinity Health System
1611 S. Madison Street
Appleton, WI 54915