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5 hours ago · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hello @mary76 I have had recurrent tongue cancer which is a bit different and was treatable with more surgery and some radiotherapy. A fellow New Zealand patient has had good results from stereotactic radiotherapy to the lesions on her lungs and Keytruda, the immunotherapy drug. I have heard that 20% of patients with metastatic head and neck or oropharangeal cancer respond well to these immunotherapy drugs. I'm not an expert and don't know your situation it seems there are options out there.
I'm really sorry to hear this has happened to you. It is gut-wrenching, I know. You are doing the right thing by reaching out and asking questions. I found I needed counselling when the cancer came back. It helped a lot.

Mon, Jul 29 4:31pm · Diagnosis and discussions: HPV 16 Squamous Cell Carcinoma in Head & Neck Cancer

That sounds very interesting, Colleen. They are talking here about an increase that is "acclerating". It is indeed a rising tide. Fortunately the treatments are curative but also very gruelling. And we need to raise awareness and advocate for early detection.

Wed, Jul 3 11:27pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

A good surgeon, a date in the near future … This is great news. I wish you well.

Sun, Jun 30 2:35am · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Sorry to hear this. It's a real shock when this happens when you assume it is all over. It's normal to be scared but you will feel better when there is a treatment plan. I assume that there will be radiotherapy and chemo options and have heard that these are becoming more targeted with fewer side effects.
Know that there are people out here who understand what you are going through and wish you all the best.

Wed, Jun 12 5:18pm · Emotional implications of having a feeding tube in Ear, Nose & Throat (ENT)

@patriciagsr My heart goes out to you although it sounds to me as if you will be able to eat again. There is hope. I have had head and neck cancer and can eat only wet, mushy food. Yesterday I had a fit of self pity. I was hungry! But most of the time I'm grateful that I can eat anything at all. Many of my friends are tube fed or went through a long period on the peg.
No more social eating is a nightmare at first, you get used to it and for me a big frothy coffee while other people eat is my solution. I can eat some cafe food but it is messy. I had a coffee a couple of days ago with a woman who is tube fed. I had a coffee, we sat outside, we talked, someone came up and joined us with a big container of chips and offered us some. We explained why we couldn't eat them and an interesting conversation ensued. I hope this friend will one day be able to sip a coffee through a straw!
I'm very interested in your account of the formulas. I was on one for about 7 weeks and had no problem but some people hate them and would like to learn how to use an alternative.
Also interesting is what you say about sugar.
Go well. keep persevering, try to do the non-eating things you enjoy . I hope for a good outcome for you.

Sun, Jun 9 9:05pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

@karenjf There are degrees of normal: okay normal and normal normal and some of us have the new normal. Sounds as if you are improving nicely.

Sun, May 26 8:28pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Well done! It's a process and there's light at the end of the tunnel.

Tue, May 21 10:04pm · Erosive oral lichen planus in Autoimmune Diseases

@maryz You have been having a hard time! It seems that thrush (candida) and OLP go hand in hand. Very painful.