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Posts (211)

Tue, Mar 3 7:08pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Sorry to hear this @ezg. There is good treatment for tongue cancers. I have a reconstructed tongue made from tissue in my forearm and I'm okay. Hope you can tell us more.

Fri, Feb 21 12:16pm · Scar tissue in throat caused by radiation and chemo treatment in Head & Neck Cancer

@maryemma Did you have radiotherapy? I'm afraid these problems are common in head and neck cancer survivors. Bread is difficult because it is too starchy and forms a sticky ball in the mouth. Some people lose their sensitivity to acidic foods and their dry mouth as times goes on. Sour cream can mitigate the acidity in some acidic foods. Wishing you good progress.

Sun, Feb 2 5:27pm · Throat lump in Ear, Nose & Throat (ENT)

@mayogirl7 It is good the lump hasn't grown but I agree that you should ask to be referred to an ENT. It's probably harmless but a neck lump should always be investigated.

Thu, Jan 23 12:19pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hello @grizz20, I do not know anyone and had to look this cancer up.
However, I do know that radiation is often considered a good way of mopping
up any stray cells after successful surgery. On the scalp, the radiotherapy
should not be too bad, compared to those of us who experience its effects
in the mouth.

It sounds to me as if your sister is fortunate that the cancer was found in
an early stage and could be removed.

It's hard for people with rare diseases to find peers. There might be a
rare diseases group here but as far as having surgery and radiation to the
head and neck go, we are you group! I wish your sister well.

Sat, Jan 18 9:39pm · squamous cell in throat in Head & Neck Cancer

HI @daddyof4 I know how you feel. But as Colleen says, it's better to get it seen. It's much scarier from the outside looking in and being in uncertainty than actually getting a diagnosis if it is cancer. These cancers are treatable but chances are it's not cancer at all. And the fear gets less when things are dealt with. I wish you well.

Fri, Jan 10 2:31pm · Inconclusive MRIs: Abnormality in pineal gland in Head & Neck Cancer

The agony of waiting! I know it well. It's hard the first time. First of all there is good reason to believe there is no cancer, secondly, you can use this time to treat and spoil yourself. It it is cancer you will have some treatments which might not be nice so try to do things you really love over this time. Another thing is to avail yourself of a counsellor. They are used to dealing with people going through this sort of stress. You aren't alone. There are thousands of cancer patients out there going through the same thing and many of them online, all of them knowing that uncertainty and being in limbo is a major cause of stress. We are with you.

Dec 20, 2019 · Hearing loss after radiation treatment for head and neck cancer in Head & Neck Cancer

I don't think you will lose all hearing Ross but I do have one friend who needs hearing aids after radiation without chemo. Time to talk to your team about it. And you are badly burnt by the rads. I remember my burnt skin rubbing off about two weeks after I finished treatment. Good luck to you.

Dec 11, 2019 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

@rossfee,Yes! It's usually from chemo (Cisplatin) isn't it, but radiation near the ear can cause it too from what I can see. We have a problem in New Zealand where our medical care is free but hearing aids aren't funded even if hearing loss is caused by treatment.