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Sun, Mar 10 8:42pm · Scar tissue in throat caused by radiation and chemo treatment in Head & Neck Cancer

Thrush is miserable when you have it in your throat. Here's hoping you get some relief soon.

Sun, Mar 10 8:40pm · Scar tissue in throat caused by radiation and chemo treatment in Head & Neck Cancer

This is an incredible story. I think radiotherapy is a lot more targeted these days.

Mon, Feb 11 6:26pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

@cpaulestep Cancer can be very much random. I had lichen planus, however, that over many years turned to cancer or maybe was cancer much earlier than was recognised. They do say that long term irritation (over decades) can cause it but as you say, you just want it gone. I wish you well in your search for further treatment.

Thu, Feb 7 4:37pm · Erosive oral lichen planus in Autoimmune Diseases

Hello@jshdma Here is a recommended oral medicine specialist in NY. My contact is a dedicated oral medicine specialist with both dental and medical quals. She recommends seeing such a person for OLP and BMS. You might already know all this! It's just that Kim, my contact here in NZ, is not the sort of person to wash her hands of people in distress so I tend to listen to what she says.( I don't see her as a patient but as consumer rep on a hospital committee.)

Wed, Jan 30 3:50pm · Erosive oral lichen planus in Autoimmune Diseases

@jshdma I have emailed my oral med specialist contact and she said she would seek out one of her contacts in the US for you if you could tell me what part of the world you reside in. She says these are difficult to treat but as I said, she is a very dogged specialist and there's a tiny little chance that something like this could help.

Tue, Jan 29 5:26pm · Erosive oral lichen planus in Autoimmune Diseases

@jshdma I heard the same thing about OLP 10 – 15 years ago. My mother had lupus. Cortisone relieves symptoms but long term causes huge problems. I will ask an oral medicine specialist here in NZ about BMS when I see her next. I'm a patient rep on a committee she is on. She is not the sort of person to give up on people.

Mon, Jan 28 5:22pm · Erosive oral lichen planus in Autoimmune Diseases

@march13. Thanks for your reply. I'm out of date with OLP. Funnily enough I have evidence of it now but the serious OLP on my part was in the 2000s and since then I have not kept up with it. I'm glad there are some practioners who know how to deal with it. Back in 2007 in my country there seemed to be no one. I wrote to the national dental school in desperation.

Sun, Jan 27 11:30pm · Erosive oral lichen planus in Autoimmune Diseases

@jshdma I don't think there is a cure for autoimmune diseases. As far as I know lichen planus is such a disease. From what I can see here the combination of the dexamethasone mouthwash and nystatin sounds like good advice. I acknowledge that these conditions are just plain awful.