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Posts (305)

7 hours ago · Biting Nails in Just Want to Talk

@lotsofpain I know a few people with nail biting issues. Some things that worked the best: keep nails polished/manicured; carry nail care supplies with you to clip hangnails, broken nails, etc.; use Vitamin E oil every evening before you go to bed (also in the morning if you can); find a picture of how you want your nails to look and put it where you will see it every day (desk, monitor, bath mirror, refrigerator); set a goal of weekly nail maintenance (combine it with something enjoyable like a massage, tea with friends, bath, etc.); find something to keep your fingers busy, particularly during high biting times (a pack of cards to play in-hand solitaire, a journal, a book, hand sewing, knitting, crochet, etc.). Beyond the fact of how bitten nails look, they do not send a good message to employers, co-workers, clients, or anyone you meet. You remain in my prayers for mastery of this issue.

8 hours ago · Plasters in Just Want to Talk

@lotsofpain My favorites are fabric because they move with your fingers and the glue will hold through hand washings. They do get soggy about half way through the day. My husband likes the waterproof bandages. They also hold well and resist the water. They do not get soggy, but you lose a little flexibility.

Sat, May 4 12:21pm · Stage 3 CKD in Kidney & Bladder

@gaybinator I think I may understand the "reversal" of dietary guidelines relating to water. When trying to save a kidney they want you to use it regularly and keep it flushed. Once the kidney is gone, those fluids have no way to escape and remain in the body; often resulting in edema and other problems. I remember meeting one kidney transplant patient whose favorite meal post transplant was grilled steak and brown pop.

Thu, May 2 6:28pm · Stage 3 CKD in Kidney & Bladder

@kamama94 Regarding your elevated BUN and Cr, my doctors recommend drinking 2-3 liters daily. This equals 70 to 100 ounces. I have a 20 ounce travel mug I fill a minimum of 4 times daily. 80 ounces is about 2 1/2 liters. A better check to see if you are getting enough fluids is to check your urine. If it is clear or very light yellow you are good. The darker yellow the less hydrated you are. If it is near orange you are probably in or near to crisis. Blessings.

Thu, May 2 6:20pm · Stage 3 CKD in Kidney & Bladder

@kamama94 My opinion for the arterial-venous access graft surgery is to wait if you are basing it only on your test results. My first step would be to ask your current nephrologist why he is making this suggestion at this time. What basis is he using to support this suggestion? Is there something other than test results? If so, what is/are it/they? I have been stage 3 CKD since 2013 and holding. I think dialysis is always on the list of things to consider once you reach stage 3 CKD. Keep us posted please. Blessings.

Wed, Apr 24 10:13am · Recipes, Food Tips, Healthy Eating & More in Just Want to Talk

@debbraw My suggestion is to become friends with your blender and food processor. Just put whatever you cook for your husband into the processor and grind until it is the right consistency for you. Also make sure you have plenty of sauce to keep your foods moist. Good luck.

Sun, Apr 21 1:18pm · Dieting, Mayo Diet, Keto Diet, any suggestions? in Healthy Living

@user_ch53e9c09 I am not a fan of any particular diet, per se. My focus is to eat whole, natural foods as much as possible. In particular I avoid preservatives, artificial sweeteners and most "fads". Based on my various diagnoses I limit: fats, carbs, dairy, oxalates, potassium, phosphates and fiber. What this means in reality is:
Drinks: No soda, rare alcoholic drinks (1/2 glass wine with holiday meals), a great deal of water. I drink a mixture of 18 oz. hot water with 2 oz. coffee. This is my daily indulgence.
Vegetables: All well cooked except cucumbers and some tomatoes. My favorite is roasted (spray pan with cooking oil, place cut vegetables on pan, spray vegetables with cooking oil, sprinkle with salt and bake at 375 degrees for 20 minutes), but I also steam and boil them. Nothing green and leafy. No root vegetables except carrots and an occasional turnip.
Fruits: Fresh fruit as much as possible. Frozen or canned without syrup occasionally. No juices (I find them to add a great deal of sugar without providing fullness). No berries except strawberries. I eat a banana every day, an or apple orange occasionally, peaches (fresh in season, frozen when not), strawberries fresh or frozen.
Meats: Chicken breasts or thighs, fish, and beef roasted, grilled or braised using herbs.
Carbohydrates: Boiled white rice, pasta, rice cakes, and occasionally white bread (as close to natural as possible, read ingredients).
Desserts: These are my indulgences, picked with consideration as "best" choices for me. Angel food cake, ginger cookies (baked as pan bars), spice cake, and vanilla ice cream.
I sometimes use Jiffy peanut butter for a protein boost.
I think of my diet as what I normally eat, not a list of foods that I eat or limit for a certain time and then "go back to normal".
I have heard good things about the Mayo Diet, so you might want to try that. I am not a fan at all of the keto diet I have had too many episodes of ketoacidosis as a diabetic to want anything to do with that "diet". I have heard that it may work if you use it intermittently with a good meal plan.
I hope you find what you need and do well. Blessings.

Fri, Apr 12 11:46am · Living with Neuropathy - Welcome to the group in Neuropathy

I have autonomic neuropathy, which affects every system in my body. I have a bunch of questions. Does anyone know if this is curable? Is the best we can do to slow or stop the progress of the damage? I know nerves can regenerate over time, but how much and how long does it take?
I feel I am getting mixed messages from different doctors. Thank you to everyone that has any information for me.