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Posts (8)

Nov 7, 2016 · Sjogrens in Autoimmune Diseases

I have found that tree tea oil shampoo plus rinsing with witch hazel does help my head. My arms and legs keep itching.

Nov 6, 2016 · Sjogrens in Autoimmune Diseases

Does your skin itch. My arms and legs really itch. I apply lotion twice a day and take benedryl. Guess it helps. It puts me to sleep.

Nov 6, 2016 · Sjogrens in Autoimmune Diseases

There is fluid in the cochlear and the little hairs in it died. So, I am totally deaf in that ear.

Nov 3, 2016 · Sjogrens in Autoimmune Diseases

Nothing smells right. Sometimes I think I smell electrical smoke, etc. Its scary.

Nov 3, 2016 · Sjogrens in Autoimmune Diseases

I lost my hearing overnight. The specialists called it something like Sudden Sensorial Hearing Loss. All 3 said they see 2-3 patients a year with it. Some regain part or all of their hearing. Not me. Stone deaf. However, I thank God it is silent. No roar or any noise.

I have taken thyroid medication for 30 years and prilosec for probably 10.

The Mayo Clinic diagnosed me thru blood tests.

I went to a rheumotologist but he said Sjogren’s was nothing to be concerned about…….. My primary doctor takes better care of me.

My doctors do not offer me any helpful solutions other than what we all read about stuff for the dry eyes and mouth. I have found that taking 3 Flax Seed Caps a day keeps my eyes moist. The only thing that is helping my throat are Halls Honey Cough Drops. I keep Avon Care Deeply lip stuff on my lips which does help until it wears off.

I am not willing to take any of the drugs. I personally think the side effects are too dangerous. Just my opinon for me. I do not fault anyone for whatever works for them.

Fortunately, I have primary Sjogren’s. I see where there are 3 stages of it and later I may develop Lupus in addition to it attacking my pancreas, liver and kidneys.

Nov 2, 2016 · Sjogrens in Autoimmune Diseases

There is fluid in the cochlear which Sjogrens could affect.

Nov 2, 2016 · Sjogrens in Autoimmune Diseases

I totally lost my hearing in my left ear overnight. Doctors said the MRI showed those hairs in the cochlear had died….

Nov 2, 2016 · Sjogrens in Autoimmune Diseases

I was diagnosed in 2010 but now recognize I have had Sjogren’s since childhood. I hurt so bad ever day. Right now it is my lower back and both hip joints. Also, does anyone else find their sense of smell is weird?