Badges (2)

About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (24)

Jun 22, 2018 · Hailey-Hailey Disease in Skin Health

@jasrend, My heart goes out to you. What is helping keep the pain away for me is using mupirocin ointment then Desonide cream over that and if there remains pain I add prescription lidocaine ointment over that. If it's hurting badly to begin with I start with the lidocaine ointment. I am also taking fluconazole 150 mg tablets once weekly and minocyclime 50mg capsules once daily,both antibiotics.

The only thing which was healing the HH was as I wrote above, " My dermatologist had me try a compound Naltrexone 3mg caps because my HH had gotten so bad. This drug in 30mg is for some other problem, but scientists discovered it helped HH get well as long as you continue taking the compound. The first thing it did was stop the itching, then the pain and every thing except between the legs & behind was gone. The HH between legs & behind was shrinking. Then I ended up in the hospital where they stopped the drug to see if it was interfering with blood pressure meds. The HH returned with a vengeance! So I called dermatologist to have doctor put me back on the compound, which he did." Starting over with this product did not work, If the Dermatologist will let you try this and you will not let anyone stop it even for one day, it may be the answer to stop the disease. It's a compound because it's only 3mg of a 30mg Naltrexone tablet. Blessings to you and I'll be praying for you,

Mar 9, 2018 · Hailey-Hailey Disease in Skin Health

@huitzilin76 and anyone with HH- My dermatologist had me try a compound Naltrexone 3mg caps because my HH had gotten so bad. This drug in 30mg is for some other problem, but scientists discovered it helped HH get well as long as you continue taking the compound. The first thing it did was stop the itching, then the pain and every thing except between the legs & behind was gone. The HH between legs & behind was shrinking. Then I ended up in the hospital where they stopped the drug to see if it was interfering with blood pressure meds. The HH returned with a vengeance! So I called dermatologist to have doctor put me back on the compound, which he did. Now I'm just waiting and praying it will start working again. Just 2 days without compound made such a difference. If your dermatologist will try this one on you, don't let anybody take you off it. It may take a month or more to start working but be patient and I hope it will work for you. It was miraculous how it worked and I intend to keep taking it now and praying it will work again.

Aug 19, 2017 · extreme outer ear pain in Ear, Nose & Throat (ENT)

I wondered if it is the air or water filler instead of something that moves around as it touches your ear, shoulder, face, etc.

Aug 17, 2017 · extreme outer ear pain in Ear, Nose & Throat (ENT)

I bought this pillow 3 weeks ago from mediflow.com– and the ear pain stopped the first night I slept on it and has not returned. I didn’t put water in it, just use the air filled pillow.

Mediflow Waterbase Travel Pillow × 1 $29.99

Discount (Welcome10Off) $-2.99
Subtotal $27.00
Shipping $10.00
Total $37.00 USD

Jul 26, 2017 · extreme outer ear pain in Ear, Nose & Throat (ENT)

Hello @karenwithnomoreearpain. Please tell us the name of this pillow and where we can buy it. Thanks for the info. @danavs.

May 28, 2017 · extreme outer ear pain in Ear, Nose & Throat (ENT)

Hello @ellienewfan. I have a painful skin disease which hurts every time something touches skin, especially when I lie down. Dermatologist prescribed Lidocaine cream for me to apply to neck, shoulder, chest, EAR, and anything else that is painful when I try to sleep, I also have sleep apnea, wear mask with apap, and this has nothing to do with painful ear. Have worn mask for 15 to 20 years, and painful ear at night did not start till maybe 5 years ago. The Lidocaine cream is wonderful and you might want to ask doctor for prescription. Ask for the jar, cause you will lose some cream in a tube.

Mar 29, 2017 · Falling Living with Chronic pain in Chronic Pain

@gailb, It warmed my heart to read your touching words. Thank you and God bless.

Mar 29, 2017 · Falling Living with Chronic pain in Chronic Pain

@rosemarya, thanks again for your concern. I do get some help. A friend who lives in a city nearby, has a job that makes her work overtime, & has two children finds time to visit once a week. One time she buys my groceries & anything I need, washes two weeks of clothes, folds & puts up the laundry, changes my bed, cuts my toe nails, takes out garbage, and anything else I need done. The other weekend she changes my bed, takes out garbage, and brings milk or anything I’ve run out of. Because I bleed on bedding and get cornstarch on it, I wish I could get my bed changed daily, but I am so blessed for all she does do. She often tells me she wants to be just like me “when she grows up.” I tell me she is my angel and I love her dearly.

Most of the time I can find someone to take me to a doctor’s appointment, and I can always get a ride to church when I am able to go. Praise the Lord for that. I can always put my garbage just outside my door & one of my neighbors will take it to bin. Another neighbor calls to check on me and says she’ll come visit when she can. The Lord is good to me and I am truly blessed.

I never married, travelled, moved to 5 different states, did 5 & 10 mile hikes, climbed a mountain, and forded a river, even became a professional belly dancer, enjoyed life. I did not get saved till I was 46.5 years old & my life changed forever. My parents are both deceased, and both my brother & sister have died even though they were younger than me. I, of course had no children, so I have no family to help take of me. I am thankful for those God sends my way to help me.

I also have sleep apnea (apap & full face mask), Umbilical hernia, ulner nerve entrapment on both elbows with 2 numb fingers on each hand, spine curvature W/numbness in left shoulder, and a fractured C-2 from another fall, as well as massive muscle damage in left hip & leg from a fall several years ago.

I do have a lot to deal with, however, I cannot say enough times how blessed I am. And now I have you wonderful friends on Connect. I appreciate you very much to take time to talk to me when you have so much to deal with yourself. God bless you every minute of each day.